Posted 2/12/2009 8:10 AM (GMT -6)
Hi all, I've noticed with a few of your signatures that some of you do have SSc/scleroderma. My mother had MCTD, of which SSc was a part. She eventually developed interstitial lung disease and passed away in 2000 at the age of 58. I have diagnosed RA, but have symptoms that progressively seem to match MCTD or early SSc. I have raynaud's, like many of you, but it seems to get worse and worse every year. I'm having a very hard time with this winter, with frequent attacks (even in 74 degree rooms) and constant fingertip swelling. I have digital pitting all of the time, except for when I get out of a warm shower or bath. I have a huge intolerance for the cold; I use a space heater year round. I also have a hypomotility disorder of the LES, another sx of SSc and/or MCTD. My arthritis is probably more similar to MCTD than to SSc. I do not have the antibodies, however, for SSc or MCTD. I have a negative ANA--but a positive RF (hence the RA dx). I am a glaucoma suspect, specifically for normal tension glaucoma; this may be directly related to the raynaud's. As far as I can tell, I meet the diagnostic criteria for CREST syndrome (I have the Raynaud's, Esopogael dysmotility, and I'm starting to get telangectasia on my face), but I'm only 40, so a bit on the young side for this issue.
Should I bring this stuff up with my rheumy? He knows I have raynaud's, but he doesn't know that it's gotten worse nor does he know of my huge problem with being cold. He also knows I have the esophogael dysmotility problem, which he thinks is significant. Does anyone have any experience with this?
Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Methotrexate, nexium, tramadol, nasonex,Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan, zyrtec, zegerid, aciphex