Posted 2/14/2009 4:42 PM (GMT -6)
I hope everyone here is doing as good as is reasonable given everything. I am finally on the mend, I think, and hopefully for good. I am on my last month of TB antibiotic and my blood work has changed! My antithyroid antibodies (TPOs), which were in the thousands are now low normal at 17! TPOs have been culprits in lupus like severe nerve problems that result in coma and even death (hashimotos encephalopathy). It seems that the underlying cause,or at least most damaging factor, in my autoimmune condition was TB, or another mycobacterium type infection. Even though this infection was "latent" it apparently had entered many parts of my body, especially my endocrine system.
I haven't had my ANA done yet but I expect it to be normal for the first time in fifteen years. My vitiligo and hyperpigmentation seem to be slowly subsiding. My adrenal and pituitary levels are slowly rising, gi problems 100% better. I guess this goes alot to possible theory that infectious components are triggers to autoimmune disease.
I have also improved my health and weight because my endocrine system is mesed up and I've had a hysterectomy, to a bio-identical hormone specialist who is an MD and gyno/urologist. They have tested me for nutritional deficiencies and all my hormones (for once in my life) and put me on a progesterone cream they prescribe and make to ensure quality. It has helped with my chronic pain and fibro, vitamins and supplements are also helping, along with DHEA and a specific healthy diet, to lower my estrogen levels which will lower my cancer risk hopefully and they have been able to lower my HRT estrogen from.1 to .75 with no adverse effects at all.
I actually have soft natural breasts, no more sore ribs and underarms from fibriods and that happened within days of startnig the cream. The changes in my breast tissue and overall pain really made me realize that estrogen replacement in me without progesterone (this is in me specifically) is a really bad thing. I can also think. My belly fat is going away!
My doctor has written a book and there are good recipes in it and anyone who wants info can email me. I have many dietary restrictions and these dietary changes meet most of the criteria for all the healthy medical diets such as heart healthy, vegetarian, diabetic, etc, nothing fancy. The recipes ae helpful.
While I may still have autoimmune disease, these quality of life changes can make it more bearable and improve our appearance and feeling of well-being, especially being women with our complex hormonal stuff adding to it all. At least, I feel like I'm doing something, making some progress and not looking so much like I'm 9 months pregnant but getting a waistline again.
Taking the positive TB test results seriously and treating them really kept me from spiraling downward slowly until, due to immunosuppression for autoimmune disease, the full active TB would rear its ugly head. It was festering throughout my body.
I'm sorry this is so long, but I hope it helps someone somehow. I miss you all, but have been kind of living, going to phys. therapy, working hard to try to be better. My son is still very sick and they refuse to treat him, hopefully I will not be reinfected.
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids