thanks Laura for that. Way, way beyond what I can afford I am afraid.
I wouldnt be insured either from Ireland to go there, so it would have to be out of my own pocket and I am single and have hardly ever really worked cos of my circumstances.
Please, please tell me....its a weird question...how ILL can you feel with as I was told I had, mild sjogrens.
I feel I am getting sicker and sicker. I cannot believe that since my collapse in 05 that it was just sjogrens.
More and more i think its Lupus with CNS involvement.
I feel shattered tired, now I am hardly able to do a thing athough I do push it but in past two weeks just sleeping a lot and lying down.
If the mepacrine works will it make a huge difference, I am unable to take plaquenil cos of rubella eye damage.
I feel so ill I feel I am dying.
No blood work has indicated that, but you have just got to look at me and see that I am near dead on my feet and the patronising looks from strangers seem to say the same with the sympathetic weak smile.
I really am frightened.
second week of the mepacrine.
Congenital Rubella Syndrome (CRS) Severely Deaf, Pes Cavus, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder, movement disorder, recently dxed as drug induced 2008 Crohns Disease 1996,Hypothyroidism 1998, Raynauds 2006, Sjogrens 2008, Chronic Muscle Myopaythy 2008, spine in very, very bad way dx 2008
Irish, not an illness!
100mcg tyroxine, 10mg Cipramil, 3mg Entocort, 30mg Tamazipam, mystatin, sudocream, neurontin 600mg, acidopolis, Vitamin B complex, Coenzyme Q10, Vitamin B12 injection, Nexium 40mg, Fortijuice.