Make sure to take pictures of your rashes. Take the pics with you to each doctor appointment. Also, make sure to collect a paper trail of all your lab work and tests. It seems like a pain if the tests are showing up as "normal" . . . but sometimes we are told they are normal and they are actually a bit out of range. Anyway, sometimes it is helpful to track how they change. . . and it will help when you go from doctor to doctor if you take your record folder with you.
Have you seen a rheumatologist?? That would be the lupus specialist who could actually diagnose you.
Hang in there. It can take a really long time to get the attention of some of these doctors.
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator