Anyone going 2 LFA Advo. Day in DC?

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Regular Member

Date Joined Aug 2008
Total Posts : 56
   Posted 2/21/2009 1:44 AM (GMT -6)   
Just courious, is anyone planning to attend the LFA Advocacy day in DC march 2-3?  I am local to DC and would like to go but not alone!  Anyone been in the past?
31 year old mom of 1:SLE,UCTD,FM, Arthritis, Reynolds, Migraines, Alopecia, Periphreal Neuropothy, Int. Bells Palsey, Costrocondritis(?), Degenerative Disks, Bulging Disk/Cervical, a bunch of other stuff I don't remember right now and even more labwork I dont understand! Patient at Johns Hopkins in Baltimore, MD. Plaquinil, Trazodone, Lidoderm, Neurontin, Flexeril 

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 2/21/2009 8:50 PM (GMT -6)   
I won't be going but I bet it will be a real eye opener. I would love to attend somthing like that some day. Let us know if you get someone to go with you. Maybe you could call the office and they could hook you up with a local person. It would be good to meet someone in the area in person too.
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix ,pot.chlor.,B12 ,iNDEROL
Bear ye one another's burdens
Galatians 6:2 KJV


Regular Member

Date Joined Feb 2009
Total Posts : 20
   Posted 2/27/2009 12:07 AM (GMT -6)   

I was registered to go and bring my 10 year old son with me but I just got out of the hospital for pneumonia (again) and I think it would be too much. Also my son's school is giving me grief because he's been absent 21 days this year- he'd be out 2 more. I'm fixin for a fight for them there teachers tomorrow. But I'll go next year if my new, rooty-tooty rheumy helps me get better!


Diagnosed with SLE 1994,Fibromyalgia 1994,Interstitial Cystitis 2000,lupus pneumonitis 2002,peripheral neuropathy 2002,cerebral anoxia 2007,
Go Gators!

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