I just made mayo mad, so I feel you. They wanted to send me to "pain management camp" which is being committed to a facility, forced to work and exercise and diet, denied pain meds and forced to take psychiatric medication. They claim they have a great success rate since 97% of people leave there on no pain meds (THEY WONT GIVE M TO U!) and about the same percent claim the program helps tremendously (I'd say ANYTHING to get out of there). I found out today that what he called fibro, just in my one hip an leg mind you, is actually a pinched nerve that needs surgery because I'm losing the ability to lift my toe! What an a88.
The hematologist is doing the same thing I have been going through and I know its so hard to get a referral to a hematologist, but somehow, you need a second opinion. I don't think you need a referral for that, since you already had a referral to one. I don't know. But I'd fight if you really feel something is wrong.
I know we second guess ourselves because they totally undermine our clear logic. The sad fact is, docs are lazy lots of times, since their profession is pretty much unregulated as far as requiring tests and you can't sue em anymore, at least not easily.
I know I have a test that showed possible lymphoma three years ago and finally, after complaining to mayo about a lack of advice on the subject, am finally going to see an oncologist. At least I may get some questions answered, maybe an updated test. I know they can't rule out me getting lymphoma in the future, but I'd sure like to knw what all those lit up spots are on my gallium scan.
I was a medical assistant long ago, I know what you mean about knowledge. They often don't care so much because they don't have it, I think. If they had it, they would understand. And the guys really bending over backwards to call you a kook when really he has been caught not doing his job as well as he should.
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids