I don't know Smurfy but you might ask the doc about the treatments and what they do to your stem cells. Some treatments damage your bone marrow/stem cells and if you need a bone marrow transplant later you are not a candidate. I don't know which treatments are the bad ones. This is something I'm afraid of and is the only thing I know of as a big thing to watch out for. I was dx with possible lymphoma and my eyes are affected too, and the docs told me that if they treated me and it wasn't lymphoma, I could get it. Idon't know your age and what meds you've been on and even if I knew them, I wouldn't know enough, but the stats seem to be incomplete because there is some consequence to not getting the condtion managed. 5% is not that high, and if you would get a tumor, would it be operable even though not cureable? I wish I could help, I can only try to be a sounding board for what you wrote and pray and wish the best outcome and treatment for you. Maybe its time for a second opinion with someone really good, not saying your doc isn't, but sometimes hearing from anothergood doc might shed different light and they may know something new.
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids