Just wanted to say I know exactly how you feel. I've been ill off and on for years now, but particularly ill for the last year. Lots of random stuff I thought which didn't seem to connect up - headaches, dizziness, rashes, allergies, high colour in my face and neck (sometimes I go bright red, for no reason and my body temperature is normal but I feel like I have a fever), anaemia, asthma, numb hands. I woke up on day in July with numb hands, and my GP finally referred me to hospital. I saw the consultant 3 times and he just kept doing blood tests and sent me for a nerve conduction study. The NCS is normal, but ANA is positive in my blood. So then he sent me back to my GP, because at the time the only significant clinical symptom was the numb hands. My GP then referred me to a rheumatologist. In the time I have waited I have now developed other symptoms - pins and needles in my neck and feet and a constant headache that doesn't respond to pain killers.
This whole referal process has taken since July 2008, and I finally get to see a rheumatologist on Thursday this week. That's 8 months of waiting around, 8 months of worrying, feeling unwell and not knowing what's wrong, which is the hardest thing in the world to deal with. Neither my GP or my consultant at the hospital explained too much about
the tests they were running or the symptoms I was having so I've been feeling very isolated and upset. Last week I found out there was a new GP in my practice so I made an appointment to see him and ask him about
what was going on, as I don't really like my GP - I must change sometime. I also went to see our Occupational Health Nurse to see if she could advise me. They have both confirmed that investigations are being made to identify if I have some sort of autoimmune disorder, and that the diagnosis process can take some time - particularly when presented with a patient like me who has few concurrent clinical signs - however that has now changed and I'm hoping to get much further along with a diagnosis when I see the rheumy.
Post Edited (alim0nkey) : 3/8/2009 10:00:26 AM (GMT-6)