I'm probably oneof the few people here who has cushings BEFORE taking any steroids. In other words, I got it befoe I'd taken any steroids or been diagnosed with ai disease. I also have hashimotos and am workingon adrenal malfunction due to my untreated screwed up pituitary.
I have all Barb's symptoms, but the buffalo hump and hairiness is not that bad on me, my problem is mild and goes up and down. I look like an apple with toothpick legs and arms. I actually lose weight on prednisone and my skin gets not dry and the cushings symptoms improve on prednisone, which freaks the doctors out. I stop retaining water on steroids. I was diagnosed with polyglandular dysfunction in 1992, an autoimmune endocrine disease where the different glands are attacked, but in a certain somewhat predictable order.
I have benefited from the comprehensive testnig of my hormones that my ob/gyn who does bioidentical hormones has done. They have done better for me as a woman than my endos and have done more comprehensive testing. I can't get an endo to do the tests the medical books say they need to do onme routinely, and when they come out abnormal, they don't want to treat me.
I can say that there are some things you can do to help you deal with steroids and that estrogen plays a role in how your thyroid hormones and other hormones work. If you feel you have cushings not caused by the steroids you take, I would pursue that. If you feel its from steroids, then I would check with your doc. I have had huge shots, double shots of hormones, dexamethasone is my favorite, then cortisone, then prednisone. It takes a while for the steroids to cause full blown cushings, but perhaps your tapers couldbe adjusted better perhaps you are sensitive. I know that I improve so so much on pred, I'm not even like myself. Cortisone and dex help too, I have less energy on them, but feel great. Pred gets me going.
Take care and I hope you figure it out.
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids