How fast did your Lupus develop?

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New Member

Date Joined Mar 2009
Total Posts : 14
   Posted 3/19/2009 6:16 PM (GMT -6)   
Hi, All:
Earlier, I posted that I have a high ANA (1:1280) and no symptoms.  Actually, I'm rethinking that now.  I have what may be a malar rash (bubblegum pink) that spreads across my cheeks when I am stressed, emotional, etc., and I always know because it burns.  During the last week or so, I have awakened before daylight with some sort of sweating, perhaps two or three times.  And if I sit very long, my muscles are a bit sore and stiff, but nothing that doesn't stretch out quickly with movement.  Exercise definitely helps.  No joint problems.
I think my primary is going to send me to a rheumatologist fairly soon.  My anemia is gone but my ferritin is still quite low.  The hematologist thinks that B12 deficiency could be autoimmune-related.  (I was iron deficient as well.) 
Did anyone here develop in a matter of months?  If this is going to happen, I was hoping for a period of years, but perhaps not.
Just wondering.
Best to all,

Regular Member

Date Joined Feb 2009
Total Posts : 58
   Posted 3/19/2009 6:35 PM (GMT -6)   
When I first tested ANA positive in July last year, I had few symptoms other than fatigue and a couple of numb fingers. I now have numb hands, pins and needles in my neck, pins and needles and pain in my feet, flares in my skin that make my skin bright red especially my cheeks, occasional hives, asthma, sore and stiff muscles if I sit still too long, anemia. I am awaiting results of follow up tests and am without diagnosis at present.

Regular Member

Date Joined Aug 2007
Total Posts : 206
   Posted 3/19/2009 8:00 PM (GMT -6)   
It is really hard to say how fast it can develop.  Everyone is going to be different, and if its lupus, you will hear that alot.  Its a frustrating thing to get used to.  For me, I started to have problems almost 5 years ago, and it took my body 3 years to start giving off enough signs for the doctors to actually diagnose me.  Up until that time, we just treated symptoms of it.  High ANA can mean a number of things.  My rheumy kept telling me that high ANA could mean that I had a certain virus and the numbers just haven't gone down yet.  However, when he ran a ds-anti-dna test, which is more commen yet with Lupus, signs were pointing to Lupus.  I wish there were more clear-cut answers myself, but there really isn't .  You really have to learn to be in touch with your body and treat it right to take care of yourself for as long as you can. 

 "Challenges make you discover things about yourself you never really knew."
 SLE and Class II Lupus Nephritis

Regular Member

Date Joined Jun 2008
Total Posts : 363
   Posted 3/20/2009 8:56 AM (GMT -6)   
It sems like mine has come on suddenly and is progressively getting worse.  It started for me in 2004 with hives, I thought they were flea bites until they got as big as my thigh with pain that went all the way to the bone.  Then in 2006, just agter the first positive ANA/RF came back I got pregnant with my second son.  It was during my pregnancy that the joint pains started in my hands.  After my son was born in July of 2007 I've gone down hill at an alarming rate.  I used to be very active and now I only leave the house about once a week.  I can't take anti-inflammatories because thay aggravate the hives which cleared up after four months on plaquenil.  The joint pain is now in my hands, wrists, hips and the ball of my left foot.  I have trouble walking in the morning until the pain meds kick in.  I really didn't have time to wish for a slow progression, by the time I got over my denial it had hit me so hard.  I am luck in that so far I have no major organ involvement as yet and hopefully will never see that aspect.  I must agree with what the others said, that this disease is different for everyone.  NSAIDs would work great on my pain if only they didn't cause such a severe skin reation.  Plaquenil has helped alot with the skin problems and the fatigue, but keep in mind that it takes 4-6 months to start working, so if your doc puts you on it, be sure to really give it a chance.  Be sure to check out the Lupus resources page in this forum, especially the diagnosis criteria.  I wish you the best of luck and truly pray that it is just a virus.  Hope you're feeling better soon.


PCP pretty convinced- Lupus , Taking plaquenil,Propranolol,  Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Lortab.   Mom of 2 boys 1 and 6.  Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.



Veteran Member

Date Joined Jul 2007
Total Posts : 1048
   Posted 3/20/2009 9:42 AM (GMT -6)   
Mine seemed to develop over night. But, I probably ignored some symptoms for a year or so, thinking it was stress and exhaustion. I was a brand new nurse, working 2 jobs. I was working at a youth camp and suddenly started running a high fever and went into kidney failure. They did a biopsy and knew immediately the root cause was an autoimmune disease, probably lupus. I think this is one of those things that varies vastly from person to person. Judy

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 3/20/2009 10:12 AM (GMT -6)   
I think I may have had lupus since I was a teenager but nothing really added up until I was in my 30's. I started having joint pain mainly in my hands (maybe around 2002) and other things which I thought was from using the computer at work and stress. I noticed I broke out in a rash when at the beach, it had happened numerous times since since I was a teenager. Then in 2004 I started experiencing extreme fatigue, increased joint pain, etc and I was dx with lupus in 2005. It has slowly gotten worse since then, joint pain has spread to other joints and meds don't seem to be controlling things very well.

Everyone is different, no two people have the same symptoms. There are mild cases of lupus and there are severe cases. I hope you get some answers soon.
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Darvocet (as needed) and magic mouthwash (for mouth sores)

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 3/20/2009 10:35 AM (GMT -6)   
Mine developed over a period of about a decade.  But the symptoms and how I felt got really bad, very quickly in the last year before my diagnosis.  It all came to a head very fast.  It's totally different for every person.  That's why Lupus is called "The disease of a thousand faces". 
Keep a diary of all your symptoms and take pictures of any rashes.  This will help when you see your doctors.
Talk soon,
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
Co-Moderator for the Lupus and Fibromyalgia forums

Regular Member

Date Joined Mar 2009
Total Posts : 48
   Posted 3/20/2009 11:48 AM (GMT -6)   
I started out with Rhematoid Athritis 20 years ago and just was told about this MCTD almost two months ago now. It seems to have progressed quite about since I lost my son back in October. A rash, aching joints, pain to my bones, oral ulcers, hair falling out, massive swelling, etc, etc, etc. I was bedrested last week Wednesday- Sunday. Monday I started to fell better, then my period came and I felt worst. Today my hands really hurt, my left knee area and my right hand is swollen with red patches from my finger to past my wrist. Rheumy not in today.....

New Member

Date Joined Mar 2009
Total Posts : 14
   Posted 3/20/2009 8:39 PM (GMT -6)   
Many thanks for all of the responses. Clearly, everyone is different, and I thank all who took the time to respond and share their story. My ANA went from 1:320 last spring when I was anemic to 1:1280 now when I'm not, so I don't think it's a virus nor going away any time soon....

Have a great weekend. I hope that you can do something relaxing that will feel good and will encourage you.....

Take good care.

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