Two low positive ana's

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Oct 2008
Total Posts : 261
   Posted 3/20/2009 12:40 PM (GMT -6)   
Hello all. Im sure you have seen me around posting about my symptoms and negative lab results lol. Back in september when I started this investigation into my symptoms I had a low positive ana come back. I also had a uti at the time and blood in my urine and was iron deficient and anemic. The IDA was treated and got better as was the uti. I just recently saw my neurologist to be evaluated to see if he could help solve the mystery as I have been seeing him since age 15 for seizures. Two blood work ups after that my anas were negative. I also felt I wasn't flaring those times either. My lab results came back negative except for the ana. I recieved the letter yesterday in the mail. My neuro also said I had raynauds because my pulses in my feet were good so it wasn't a circulation problem and I was tested for nerve problems which came back normal. My new primary dr tested me for porphyria. Its a rare genetic disease. It is not associated with inflammation or raynauds. Since raynauds is autoimmune itself I personally think that the anas mean something along with all my symptoms. My neuro even stated in the letter to take the result to my pcp because it could mean a rheumatologic condition. I just want to know other peoples opinions on this situation and what you think. I also see the rheumatologist I saw before in may. I was thinking about switching my appt sooner and getting evaluated again taking my list of symptoms and my blood workups showing the blood in the urine, pos anas etc. Can anybody give me any suggestions on some tests I could have ordered or anything that could help me know what to do next? I really believe Im finally getting somewhere and being in a flare am ready to be diagnosed so I can feel better! I hope you all are well and have a great weekend! -Brittanee
*Wifey & Mommy*

New Member

Date Joined Mar 2009
Total Posts : 4
   Posted 3/27/2009 5:51 PM (GMT -6)   
Hello everyone im a new member and i am scared i was goung to have a full hysterectomy two days ago , but my regular doctor at the last minute was worried.....that i won't wake up make a long story short i had to see a cardiologist that went well..... my back has been bothering me for 3 days...... now i just receive a call from my dermatologist about my blood work she ordered months ago ......... i took forever going to get it done i was going to her for a rash on my face.......she said my blood work was abnormal and my ana was 160 well i am freakin out i came across this web site ......... because i did a search..... anyone have any suggestions. mad mad

Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 3/27/2009 10:36 PM (GMT -6)   
Hi Babe38 -

Don't freak out, just find a lupus-knowledgeable rheumatologist and get a workup from them. One way to do that (if in USA) is to visit and use the 'chapter locater' to find the closest group. Then contact the closest group and ask which rheumatologists are working with them -- those drs are the ones who will know the most about ANA and related illnesses.

ANA 1:160 isn't a huge number, and there are lots of other things to consider before deciding that it is anything like lupus.

Hang in there,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(15 5mg), Piroxicam, Xanax, Trazodone, Boniva, Wellbutrin, Valtrex, Vicodin, Prilosec
Links: Diagnosing Lupus (4 of 11), Info, Lupus Resources, Help HealingWell, Drug Interactions

Life is far too important to be taken seriously. –Oscar Wilde, 1882

Regular Member

Date Joined Nov 2008
Total Posts : 106
   Posted 3/28/2009 1:11 AM (GMT -6)   
Mommy I had gone to the Rheumy for the first time about ten years ago for pain in my hands and feet i was told at the time it was just arthralgias. So I put it off as just getting older. That was until several painful years I wasn't healing from a back injury so my GP did some blood and it came back double pos for ana. All I can say is nip it in the bud if you can an try to keep it from progressing. I wish I had and it sounds like your on the right track. The best of luck.

Babe you've come to the right spot for support and info Lynn and Rosie are always great for it as are the others on here.

DX: IBS 00, +ANA 05, Depression 06, MCTD & Sjogren's 07, GER 08, NO Sjogren's 09, ?????  
Meds: Plaquenil 400mg, Prednisone 10mg, Celebrex 200mg, Effexor 150mg, Nexium 40mg and Amitriptyline 10mg
Life is what you make of it.  Just something I try to remind myself every day.

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 3/28/2009 12:23 PM (GMT -6)   
Hi Brittanee, the only thing I can suggest is make a list of all of your symptoms even the ones that are small, provide the doctor copies of previous labs, x-rays, etc and keep your appt in May with the rheumy. He/she should ask you a ton of questions about your symptoms and your family history. I don't think I would ask for certain lab tests I would first ask him what he thinks it could be and maybe ask him if he thinks it could be lupus and go from there.

I pray you get some answers soon. We all know how frustrating it is waiting on a dx but hang in there, sometimes it takes a while to get a correct dx.
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Darvocet (as needed) and magic mouthwash (for mouth sores)

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 4/1/2009 7:50 PM (GMT -6)   
Hi Babe . . . welcome to the forum. I started a new topic for you. The other members might not see your post in this topic.


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, September 22, 2018 7:34 PM (GMT -6)
There are a total of 3,005,755 posts in 329,260 threads.
View Active Threads

Who's Online
This forum has 161800 registered members. Please welcome our newest member, Envsciguy.
288 Guest(s), 5 Registered Member(s) are currently online.  Details
SoMuchFun, WalkingbyFaith, mareish, jwebb, Jack & Diane