Is this the right place?

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New Member

Date Joined Feb 2009
Total Posts : 3
   Posted 3/20/2009 12:48 PM (GMT -6)   
Hi all, I was just diagnosed with undiffereintiated connective tissue disease (UCTD).  I have a weakly positive ANA at <1:40 but a DS DNA at 1:180.  I also have multiple other symptoms that match both lupus and uctd, but not enough to fully diagnose lupus.  He does want me to get a second opinon though (floored me, a doc wanting a second opinon)!  So, I am guessing that if my UCTD does progress, it will go the route of lupus?  My rheumie did say the outcomes for UCTD are much better than lupus and most people don't progress and some go into long term remission.  I hope that is true. 
So my question is, am I in the right forum for this condition or is there a forum that is more geared for the UCTD?  Also, any info or suggestions that people could give regarding this condition would be very appreciated.  I also have myasthenia gravis and fibromyalgia (all diagnosed within the past month!)  I am obviously a bit in a state of shock this year as the symptoms really started on the first week of the new year.  So far this year really sucks and I sure hope it gets better really soon!

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 3/20/2009 4:33 PM (GMT -6)   

You're right where you need to be, and we welcome you with open arms. There are lots of folks here in what we call diagnosis limbo, others with anything from uctd to mctd. I started poking my head in here before I had any kind of diagnosis, and in my case, by the time I was really ill, I had a support system already in place. We're here to offer each other support and information, and when do you need information more than when you're not sure what you have.

You have a good rheumy if he or she recommended a second opinion. Not all rheumies specialize in lupus, so try to find one who does. I'm pretty tired right now, so I hope someone else will chime in and give you our recommendations as to how to prepare for a doctor's appointment, including keeping a symptoms journal.

I'm glad you're here and I also hope this year gets better for you real soon.


SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, tri-est, cymbalta, tricor, acifex

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 3/20/2009 10:59 PM (GMT -6)   
Hello Jaynurse,
Welcome to the forum.  You bet, you're in the most perfect place you can be!  There are LOTS of us here with UCTD or MCTD. I think it's great your doctor wants you to get a second opinion too!  Is it your rheumy who wants you to get a second opinion?  UCTD is simply a lable for "we don't know which connective tissue diseases you have, but you do have something." The "U" standing for "Undifferenciated".  It's still just as serious as a Lupus diagnosis and you'll be medicated the same.
I also have Fibromyalgia.  It's very difficult living with both Lupus and Fibro.  I sure hope you can attain a remission with your UCTD.  It's hard to do.  But not impossible.  Keep up the positive thinking!
You should probably be keeping a diary of all your symptoms and taking pictures of any rashes you get.  It will all help your future doctors. 
Welcome again!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
Co-Moderator for the Lupus and Fibromyalgia forums

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 3/21/2009 9:59 PM (GMT -6)   
Welcome Jay,

Do you have a rheumatologist? If not . . . make sure to get a referral to a good rheumatologist who treats Lupus patients. There are some links at the bottom of my signature. One of them will help you find a local Lupus Chapter. When you call them or email them, they will give you a list of recommended Rheumatologists. That would be a good start in finding a good rheumy.

Glad you found us!


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

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