Posted 3/24/2009 9:04 AM (GMT -6)
I know antiphospholipid syndrome all too well. You definitely have to see your pcp or rheumy asap. Have you had your INR/PT tested to see just how thick your blood is? When my blood gets too thick, I get the dizziness and a lethargic feeling. I can just tell that my blood is stodgy so to speak.
The burning rubber smell you get is a concern for me....After I had my stroke (due to the APS), I was left with simple partial seizures that affected the area of my brain that the stroke happened in. Part of my seizures were an electrical burning or burning rubber smell. That happenend at the very beginning of my seizures.
Anti cardiolipin antibodies are different than the APS. But they also mean your blood is thick. You need to see a doctor, any doctor right away. Don't wait. I was taking baby aspirin to control my APS, and I ended up having a stroke. It wasn't enough to thin my blood. I'm on life long Warfarin now.
So yes, this is exactly what I experience with my APS. You have the classic symptoms of it. Please call your doctor and get all the testing done right away. Keep us posted okay. We love you too and I'm so sorry you're dealing with all this. It's scary, frustrating and it makes you sad, right? Email me personally if you need to talk about anything okay? I have a lot of experience with APS. I'll do what I can to help you out.
Love you Marji,
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
Co-Moderator for the Lupus and Fibromyalgia forums