Ginny-- I hope you are feelnig better. I know that sensitivity well and believe it or not, found out that one of the non-essential, replaceable drugs I was on was making it way worse. I didn't know it but most porphyrias (which feature an allergy to the sun) are caused by the liver. That is one of the reasons drugs can cause sun sensitivity, it affects the part of the ilver that produces porphyrins. Anyway, by going to the first site there is an explanation about
liver and porphyria and the second site is a drug list of safe and scroll down to the unsafe drug list. For me, SOMA was a real killer, so Iswitched to Volteren cream. Way better within 24 hours. Often, just changing or eliminating one really bad drug can make life sane again. It can be very very serious and it is a misunderstood and I think underdiagnosed condition. Sorry the site is a second hand one but the porphyria association website is down for remodeling. I hope this helps you, it really helped me.
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids