Watch out because the hydro 25 (I'm assuming you mean the diuretic hydrochlorothiazide) will lower your potassium even more. There are other diuretics that don'thave this effect. It seems like they need to figure out if the swelling is from kidneys, liver, or both. Liver damage can cause high blood pressure since all the blood goes through there and heaviness on the top, GERD, and lots of other troubles. Do you know if they are checking you for liver disease/damage as well? An ultrasound of the liver, or abdominal cat scan or mri would show not only kidneys but liver too. I say this because anyone on meds or really most people nowadays are candidates for liver damage. I have severe steatohepatitis and its pretty much running along with my autoimmune disease, if not the triggering event. Actually, there's been some benefit shown with probiotic yogurt and liver problems as well as whats been posted here. It might be a thing to try every day if you can. Oh, liver disease can cause the red face and nose as well as lupus.
Anyway, I hope you aren't freezing up there. I was just telling my son I wanted to retire up there! Be careful with the potassium. It can be very dangerous if you get too much or too little. My electrolytes get messed up from my liver, which causes a form of diabetes. It does seem cruel for you to be off your meds for a long period of time. Actually, your income assistance is better than in the states. Unless you are pregnant, in the state I live in, you are not eligible for any medical assistance. Income assistance in some states, is as low as just ten dollars in food stamps. Andyou can't have a car or anything, you have to sell everything to get that. its disgusting. Maybe you can find a room to let where the people would cut you slack until April, when you get your IA. Maybe a church, you know minister or someone through a church or something could let you stay for a few weeks. I hope things get better and the insurance company and IA get you approved really fast and that your docs figure you out soon and get you comfortable and not swelled up.
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids