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Date Joined Oct 2004
Total Posts : 2244
   Posted 3/28/2009 1:23 PM (GMT -6)   
Hi all,

I really don't know what's wrong with me, well yeah I do... it's lupus and it sucks!

Back in Jan / Feb I had those terrible headaches and hurt all over. I felt so bad I ended up being out of work for a week. Rheumy suspected a bad flare and put me on Pred for 10 days, finally after about a week after that the headaches let up. Now they are starting back again, not as bad as before but I had one yesterday and I have one today.

Here lately I'm back to spending my weekends recuperating from the week. If I am able to do something (a little yard work, etc) I end up spending the rest of the day resting. My neck is sore and stiff, my joints ache, my head hurts and my muscles hurt. It hurts like crazy when my little dog steps on them, it's done this before and I don't have Fibro. They have checked me and although some of the pressure points are tender, it's not tender enough to dx fibro.

How in the world could I be in another flare? This last one was most likely caused from the stress I went through the end of last year. My grandma passed away on 9/30, my hubby was dx with thyroid cancer and had surgery on 10/1, funeral home visitation on 10/2 and funeral on 10/3. Then hubby had his cancer treatment in Nov and I had unexpected dental surgery in Dec and 3 days later my mom got married. The rheumy said I was most likely running on pure adrenaline and then hit me all at once. This time I haven't had much stress or anything traumatic happen, there has been no change in my meds, I don't see my rheumy until June but if I keep feeling like this I will see her sooner.

I went to the eye doctor yesterday for my (plaq) exam. My right eye is showing slight dryness from the sjogrens, right now it's not bad enough for eye drops. Usually a dry mouth is all I have to deal with.

Thanks for listening...... I'm just really down and tired of feeling like this. Any suggestions?
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Darvocet (as needed) and magic mouthwash (for mouth sores)

Veteran Member

Date Joined May 2005
Total Posts : 7720
   Posted 3/28/2009 1:45 PM (GMT -6)   
I don't know where you live, but here it's damp, chilly and raining -- produces lots of stiff & sore muscles and joints for me. This kind of weather also gives me headaches (barometric pressure changes). I also experiance a bit of stress when I visit a dr and get not-so-good news...like Sjogren's dry eyes!

In your position, I would increase my pred for 2-3 days to see if that'll help the headache, as well as getting some over-the-counter eye drops (GenTeal Eye Lubricant, Tears Natural II Eye Lubricant, NOT stuff for red-eye or contacts).

When I got the headaches when on 10mg pred, I increased to 13mg for a few days till life got really normal again, and that seemed to work.

Of course, check with your dr before messing with your dosages unless you have already been given permission to do that. Hope the headaches let up and you feel better soon.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(15 5mg), Piroxicam, Xanax, Trazodone, Boniva, Wellbutrin, Valtrex, Vicodin, Prilosec
Links: Diagnosing Lupus (4 of 11), Lupus.org Info, Lupus Resources, Help HealingWell, Drug Interactions

Life is far too important to be taken seriously. –Oscar Wilde, 1882

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 3/28/2009 2:21 PM (GMT -6)   
(((((((((( Stacie ))))))))))))

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Veteran Member

Date Joined Jun 2008
Total Posts : 1470
   Posted 3/28/2009 2:37 PM (GMT -6)   
Hey Stacie! I am sorry you are having another flare. Do you have an electric blanket that you can curl up in and watch some of your favorite movies or tv shows or get a nice book and read? Maybe take the rest of the weekend to relax and try to get yourslef feelin better. The electric blanket is one of the best things that seems to help my joints. Also, if you can get a bath, put some epson salt in your water, i don't know how it works but it really does make me feel better if i soak in the bath for 20-30 min. For my dry eyes, I use GenTeal Eye Lupbricant and it works great. I haven't been diagnosed with Sjorgrens. The past few weeks I have had really dry eyes, extremly dry mouth so dry i can't seem to get enough salvia to swollow. I don't want to mention it to the doctor just yet becuase I have a feeling they will say its a side effect of the pred, so I am gonna wait till we get my pred down to 10-20 mg and see if it keeps up. Hopefully it is the prednisone.

It is also rainy, chilly, and damp where I live. I was wandering why I had a horrible headache and sore musles and joints. Thank you lynnwood, I didnt even think about the weather bothering me that past few days. I think it has been like this since Wednesday! I am starting to forget what the sun looks like. haha. I believe tomorrow everything is supposed to clear up and then on Monday it will be in the 70's. Woohoo, maybe everything will start feeling better. I hope I am not going into a flare, i was just told that my lupus is in remission and this is the first time since I was diagnosed in Nov of 07! They said it had something to do with all the pred I have been on and the iv's of pred.



21 years old...Systemic Lupus 11/07, lupus nephritis 01/09, raynoids 03/08, Carpal Tunnel 03/08

Ultram, Prednisone, Cell-Cept, Lisinopril, Imuran, Ambien, Flexeril, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Chantex, Aspirin 81 mg, Vitamin C

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