The eye problem "scare" isn't really all it's ramped up to be. It was more true in the past when the basic component of the med was less refined. Everything I have read in the last nine years (that's how long I've taken it) lead to it being a *small* percentage (like single digits) of happening, and that once a year tests are adequate. You can check more often yourself using the web site indicated in the "resources" thread at the top of the forum. And, once you notice damage, you stop taking it immediately and the damage reverses itself.
So -- risk is small, once a year precautionary eye exam, reversible damage if at all.
As for the "seems to help" -- it is known to be a "disease suppressant" for lupus -- that's how it's listed in the doctor manuals. It's helped immensely with the overall fatigue I've felt, and helped control a variety of other symptoms -- but I have systemic rather than discoid. I think that without it the disease would be much more actively progressive....not my idea of a good time. Jennifer has good ideas about
how to keep the cost down.
I would suggest talking with your doctor before stopping it.
Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
15 5mg), Piroxicam, Xanax, Trazodone, Boniva, Wellbutrin, Valtrex, Vicodin, Prilosec
Links: Diagnosing Lupus (4 of 11), Lupus.org Info, Lupus Resources, Help HealingWell, Drug Interactions
Life is far too important to be taken seriously. –Oscar Wilde, 1882