((((((((((( Jason & Lil' Sis )))))))))))
I see the others have given you a good welcome and some good advice. I just want to welcome you to the forum.
That night-time pain is a bummer. Not only because of the discomfort, but because it robs us of the healing sleep. We heal in our deep sleep . . . so finding a way to improve quality of sleep is important. Make sure she addresses this with her doctor/rheumatologist. I'm assuming that she does see a rheumatologist. If not, that would be really important.
One simple suggestion would be to try an electric blanket or a heated mattress pad (NOT a heating pad - they can get too hot and cause burns if you fall asleep on them). Turn on the electric blanket or mattress pad about
an hour before she goes to bed. When she gets into bed, it will be toasty warm and very relaxing. This will help her fall asleep and can relieve some of the inflammation.
Another way to provide comfort/heat is to make some "Grain Bags". A grain bag is made by taking a man's tube sock and filling it 1/2 to 3/4 full with whole grain feed corn, dry beans or rice. I like the feed corn but its not easily available to some. Fold the top down about
1/2 inch and sew it. Fold again and sew a second time. Now you can pop it in the microwave. Try two minutes and then you will know if you might need to leave it in a bit longer. The grain bag is really soothing to painful areas and can safely be taken to bed. You can make several of the bags and use them as supports/props in bed too. They are so comforting. We call it "a hug in a bag".
Your sister is really blessed to have you looking out for her. You might offer to go to doctor appointments with her. Bringing an advocate with us to doctor appointments tends to move things along faster. It gives the doctor a second perspective and you can help her recall some of the issues that she will forget because we just learn to live with things and forget to mention them.
I hope your sister will join us here too!!
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
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