I live here in Mesa, and I am from St. Louis. I honestly love it. I am miss the seasons, it is harder with the sun but honestly, the lack of cold is easier. We are still making adjustments to the house to make it darker, but with shades, and a wonderful supportive boyfriend and new friends, we are adapting. We are making the house have plenty of things for me to do, hence I move in with a bachelor so plenty of organizing and decorating and yard work after sun down to keep me busy LOL. I have fibro too so that keeps me on my toes. I don't have kids, but have a golden retriever who is 6, pit bull puppy who is a hand full and a ferret Loki who is 2. The puppy is keeping me busy. My days are starting earlier in the summer, I try about
5am, go to the gym before sun up and have my time to myself. Get the dogs outside, fed, then spend some doing stuff around the house. Get the boyfriend up and take a break. Back up with a cup of coffee if needed, and breaks as needed to pace myself with chores. Nap around 2-5, then feed the dogs around then. Boyfriend back home then it starts all over. I try really hard to keep a schedule, and the workouts help with the fibro and pain. I do make sure to take the breaks and nap daily or rest regardless. I am usually in bed by 10pm or passed out on the couch. Weekends, I do go out in the afternoons, but cover up completely like I was describing. I do hike, but we do that stuff early or late in the day as it makes it nice to see the sunsets. We have a computer room that he can retreat to for sun when he wants it, but he likes the dark too. We are also going to put up window film on the house that is anti-reflective and you can pull it down when you move.
I am sure with kids it is difficult, but they have to be educated and they adjust, besides, they love their rooms. LOL. I have friends with lupus and their kids educated on it have been overprotective and love to help, and then love their rooms if made comfy for them to retreat too.
Try to hang in there. My email is under my profile if you have questions on the sun sensitivity and what else we have done.
sle 01 w/autonomic 11/05, photosensitive 04/04, sjogren's 01, ra 01, fibro 8/05, sinus tachycardia 6/04, asthma 96, allergies 6/04, idiopathic neuropathy/neuro pain 11/05. Epilepsy 3/06-gone, TIA 5/06, Porphyria 5/06, Vitamin D def 4/07, Iron def ferritin 8/07, Chronic migraines 01.Meds- baclofen 20 mg, prenatal tabs, potassium, vit D 50,000, qvar, xopenex, singulair, plaquenil 400 mg, tramadol 50mgx3, motrin 600mgx3, famotadine, darvocet 100x2 prn, amitriptyline 25mg, maxalt, topamax 150mg, tigan