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Posted 4/3/2009 9:29 AM (GMT -7)
I just wanted to say thank you all for your cards and letters, flowers, prayers and phone calls. It's been one tough month and couldn't have gotten through without you. It will be a few days before I really get back and see how everyone is doing. Frankly I havn't even dealt with my father dying yet. When I was in the hospital it wasn't so bad because the hospital was kind of like not reality. Now that I'm home I have to except that he's gone and it isn't going to be easy. Considering he really wasn't that ill and only 77 years old. Anyway i need to get my head wrapped around this and not quiet sure how. I came home on 32 different pills and will need help geting that figured out. eyes

Well anyway I am stil very weak and shakey and but I am still alive so one day at a time is all any of us have. Well I need to go and get some more rest. I'll hopfully get back to some type of normal soon.

love and thank you

carol

 CAROL

Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis

Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix ,pot.chlor.,B12 ,iNDEROL

 

Bear ye one another's burdens
Galatians 6:2 KJV

 

 

Posted 4/3/2009 9:56 AM (GMT -7)
Carol ((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((hugs))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))) smurf

 

We missed you a lot girl!  I'm so glad you're home.  So sorry about your dad, Carol. My prayers are with you as you deal with his passing.  32 meds?  Good grief.  Do you have a BIG pill sorter?  I know this is probably overwhelming for you; all of this going on.  Lean on us okay? 

 

Lots of love

Ginny

I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13


35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

 

Co-Moderator for the Lupus and Fibromyalgia forums

Posted 4/3/2009 1:22 PM (GMT -7)
Great Job Carol!!! Congrats on comming home. Wowsers...32 pills, and I thought mine was bad! LOL. Glad to hear you are doing better and you will still be in my prayers! Love ya

Amy

 

21 years old...Systemic Lupus 11/07, lupus nephritis 01/09, raynoids 03/08, Carpal Tunnel 03/08

Ultram, Prednisone, Cell-Cept, Lisinopril, Imuran, Ambien, Flexeril, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Chantex, Aspirin 81 mg, Vitamin C

Posted 4/3/2009 4:02 PM (GMT -7)
(((((((( Carol ))))))))) Thinking about you often! and glad you are home . . . but so sorry for all the issues you are still dealing with, on top of the grief of losing your dad. Welcome home! Blessings! In His Grip AlwaysRosie              " We can't control the waves, but we can learn how to surf!! " Psalms 139 Co-Moderator - Lupus Forum UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08) Clickable Links:   Lupus Resources     Lupous.Org    Lupus Criteria (4 of 11)    Lupus Chapter Locator
Posted 4/3/2009 5:31 PM (GMT -7)
((((((((((((((CAROL))))))))))))))))  I'm so thankful you are home!  I have been praying as have many of my friends at church.  I know you are dealing with alot.  I hate so much that your heart is broken.  I pray that Jesus will cover you with His peace that passes all understanding.  Love ya, Judy

Posted 4/3/2009 10:02 PM (GMT -7)
((((((Carol))))))  So glad you are home!!! 32 pills, that's alot. I hope that you keep on doing better and that spring arrives soon there and you stay well. Love to you!
Love, Marji

Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB

Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids

Posted 4/3/2009 10:13 PM (GMT -7)
I hope you feel better soon. My prayers are with you dealing with your dad.
Posted 4/3/2009 10:18 PM (GMT -7)
Hi Carol,

I'm SO glad you are home! And I'm SO glad you are doing better! You are an inspiration to all of us! You are such a tough lady, who can do anything if she just puts her mind to it! I know it's going to be hard to deal with your Dad's death, my thoughts and prayers are with you sister to give you the strength you need to get through this as you get back on your feet as well. But I know you can do it!

Hang in the Carol and take one day at a time! You're a special lady! We love you!

Hugs
Melissa

Lupus - 1997   Fibro - 2001    Sjorens  -  2007   Raynauds  -  2008

Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis

Posted 4/4/2009 7:00 AM (GMT -7)
Caorol

It's good to hear from you, what a ruff road you had taking. I'm so happy that you are home, stay strong, and as rest as much as you can....I'm also sorry to hear about your Dad. Wow thats alot of pills. Thoughts and payers go out to you..... Take care!!!
Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   

                Panic Attacks,Osteopenia,Thyroid  

  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  

  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     

Posted 4/4/2009 7:41 PM (GMT -7)

So glad to hear you are home!  Know it is still a really difficult time for you.  Keeping you in thoughts and prayers for continued strength, recovery and peace.  God bless!

Lucy

diagnoses:  mono 1972; postviral CFS 1997; fibro 1998;  UCTD (dx limbo) 2007

meds: Plaquenil 400 mg, occasional low dose xanax for sleep aid, artificial tears w/ ointment at night, Advil/aspirin prn

 

 

Posted 4/5/2009 10:55 PM (GMT -7)
Okay, so you've been home a little bit now. How are you feeling, how are you doing? Enjoying your pets again, I'm sure. Let us know how home is working out for you. Cheers, Lynnwood, Co-Moderator: Lupus Forum SLE (’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1 Plaquenil, Prednisone( 15 5mg), Piroxicam, Xanax, Trazodone, Boniva, Wellbutrin, Valtrex, Vicodin, Prilosec Links: Diagnosing Lupus (4 of 11) , Lupus.org Info , Lupus Resources , Help HealingWell , Drug Interactions Life is far too important to be taken seriously. –Oscar Wilde, 1882
Posted 4/6/2009 6:16 AM (GMT -7)
Carol what great news tongue You're such a stong woman! I'm so proud of you and greatful that you're home. Now you won't feel like ur in jail! Just enjoy resting at home Okie. Love you, Donna
Systemic Lupus ('05), depression, diabetes, fibro, gerd, hypertension, IBS, sleep apnea  Rx: Cellcept, plaquenil, prednisone, celebrex, lisinopril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin, actonel, tylenol arthritis, neurontin, phenegren, flexeril, vit C, multi vit, flaxseed oil.  Acupuncture  "Welcome to lupus, where the strange is ordinary and nothing is normal." Donna 

Posted 4/6/2009 8:28 AM (GMT -7)
((((((((((((((((((((((((( Carol ))))))))))))))))))))))))) I am so glad you are back home! You continue to be in my thoughts and prayers! Love ya
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Darvocet (as needed) and magic mouthwash (for mouth sores)

Posted 4/6/2009 12:48 PM (GMT -7)
That's great news Carol!!! I hope that being home will lift your spirits and help you recover faster. Pet's are great medicine. I just got back from out of town and I can't tell you how happy it made me to see my dogs.

Let me know what your schedule is on Thursday so I can meet you at the hospital.

See you then.

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex

Posted 4/7/2009 7:58 AM (GMT -7)

Thanks everyone, I'm feeling better today. Lynnwood asked how I am feeling so I figured I was well enough to post it.

First my 4 month old kitten got pregnant and had 4 babies 2 days ago. My vet said she's to young to get pregnant! "where did she go to school"? This cat must have tracked down the ugliest tom she could find because these are some seriously ugly babies. I thought all babies were cute. Not these ones! She's all white with beautiful grey blue eyes. These guys and all black or grey tabbies. Not that I have a problem with that but they got stupid things like all black but I white nose and mouth? dumb. Someone hit them with an ugly stick! Plus I am not happy about repopulating the would with more animals. and it different have to  happen.

Ok then my mom told everyone she was going to surprise me and drive out to pick me up from the hospital. She knew I would be mad. She got to new mexico and rear ended a semi! Totaled her car and thank God she walked away from it. I am still mad. I can't lose my mom right now. Wouldn't that have been quite the surprise? yeah carol your mom wanted to surprise ya but she wrecked her car and killed herself on the way here! I told her next time fly and rent a car. She said she likes to drive. I said yeah it worked out well this time didn't it! Ok so as far as dealing with my pop's well I'm in the anger stage for that. Every time I think about it I want to throw somthing. So I push it aside alot. I'll deal with it one day.

Ok for my health. I'm doing ok. I have an appt. with the transplant dr. on thrusday. (patty I'll call ya). The hardest thing right now is that the dr. took my steroids away. I can't be on steroids when I get a transplant. Now all of my joints hurt. I noticed I run mild fevers too. So I really don't know what will happen with that. They kept me on the plaquanil so that ishelping some.

OK well I'm hurting and need to lay down. I'll check out the site this afternoon and get caught up a little with what you all are up to.

thanks guys love ya all!

carol 

 CAROL

Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis

Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix ,pot.chlor.,B12 ,iNDEROL

 

Bear ye one another's burdens
Galatians 6:2 KJV

 

 

Posted 4/7/2009 7:33 PM (GMT -7)
Carol, I'm so glad you are home. I have been AWOL dealing with some tests and things out of town, but am so glad. Ugly kittens, eh? My cat is a grey and black tabby, but really kind of weird and slow. Can you say inbred? I love her though and she is getnig better. Four months is way too young, what a surprise. Ihope she didn't have em on your bed or something like that. Well, maybe they are little ugly ducklings. You may find homes for them, I just hope they do well and that the mom can deal with them. Talk bout teen pregnancy.

I'm glad you are back on track on the main goal with the transplant docs. I will keep you in my thoughts and prayers as always. I'm having some troubles with faith right now, just feel mad at the world, well the medical community, and just plain sick of docs, etc. as I'm sure you are. Well, stay strong and know I'm praying for you.
Love, Marji

Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB

Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids

Posted 4/10/2009 12:46 AM (GMT -7)
Glad to here you're at home and so sad about your father.

Best of wishes to you

Bryan
DX: IBS 00, +ANA 05, Depression 06, MCTD & Sjogren's 07, GER 08, NO Sjogren's 09, ?????  

Meds: Plaquenil 400mg, Prednisone 10mg, Celebrex 200mg, Effexor 150mg, Nexium 40mg and Amitriptyline 10mg

Life is what you make of it.  Just something I try to remind myself every day.

Posted 4/10/2009 7:17 PM (GMT -7)
Carol,
So good to hear directly from you! Will be praying about your appointment with the transplant docs. Let us know how that goes. Amazing your mom walked away from that accident. Her gaurdian angels are working over time! Take care and hang in there! Love ya, Judy
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