Welcome to our forum. I've started a new thread for you. That way everyone knows you're here. I've also pasted your two posts for others to read.
Hi Everyone. I am new to this site and so thankful I found you. Renee I have been in rough shape for about 5 weeks and pednisone did not help. I also am wondering why at 40 mgs I not only did not get better, I lost 8 pounds from nausea. The chills made me shake for hours at nightime and sleep was rough. I have all kinds of worries like, "How will I keep my job? How can I keep my house up?" Is there any other drug that I can take? I am on mobic, plaquenil,colchicine,etc.,etc.plus herbs. Peace to you, Tammy
Thanks for the welcome! I am tearful at being able to talk to someone else who has pain and extreme fatigue. I have felt very alone in this. I have been diagnosed for three years and it has been rough. Steroids do very little to calm the reoccuring pericarditis. I've been doing some reading and learned that nsaids are more effective. I called my doc and have not received a call back yet. Has anyone had better luck with nsaids. I am on mobic which helps my joints a lot. However the inflamation around my heart is a real PAIN in returning every couple weeks or months. Now that the sun is shining more, I am really struggling. I feel like I have the flu almost daily. Sheesh! Thanks again for the welcome! I am NOT ALONE!!!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
Co-Moderator for the Lupus and Fibromyalgia forums