Welcome to the forum! ((((((((( Jamie )))))))))
You did great posting your question. It showed up twice, so I deleted one.
Before you start researching information on your diagnosis . . . make sure that it is really MCTD. There is great confusion, even among doctors, about
There is Lupus, UCTD (undifferentiated connective tissue disease) and MCTD (mixed connective tissue disease). Some patients/doctors use the term MCTD very freely and they are describing UCTD. But true MCTD is actually a definite Lupus diagnosis PLUS Scleroderma and Polymyositis.
Lots of us have a UCTD diagnosis (undifferentiated) when the doctor can't quite pinpoint which autoimmune disease is presenting. But most of us are treated as if we have Lupus and the doctor simply treats the symptoms.
There is a post a link about
this topic in Lupus Resources . . . link at the end of my signature. You'll have to look through the thread and find the right post. But there is also a link in that post.
You used the right word . . . "mourning" . . . there really is a grieving process in working to accept a diagnosis. But you are in a good place to get some help. You'll find your new normal sooner than you think!!
Glad you found us!
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator