I think it's better to go ahead and take however much you need for a good period of time to get things controlled and to learn how to pace yourself. Then when all the inflammation markers in your blood show good improvement, the doctor will start ramping your dosage downward.
My dose was up to 15mg for 3-4 years, and after an 18-mth course of Cellcept helped my lupus calm down, and the inflammation markers came down, we started the slow ramp down. It is very dangerous to do down without a doctor monitoring and guiding the decrease -- bad things can happen like heart stoppage!!!
Below 10mg, you need to go slow to give the adrenal glands time to start working again, if they will. Some of us end up on a maintenance dose of 5mg for years.
I've just spent 3 months on 5 mg, and see the dr next week. I'm looking forward to seeing what my blood has to say and if they'll be any prednisone changes in my near future!
Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
15 5mg), Piroxicam, Xanax, Trazodone, Boniva, Wellbutrin, Valtrex, Vicodin, Prilosec
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