Valerie, I have some of the same problems. Perhaps they have you on the wrong type of diuretic. One works for liver type edema and one works for a certain type of kidney type edema. Even though I have liver disease, lasix doesnt' fix my edema, though it is the diuretic hands down given to liver patients. I take a "loop" diuretic called HCTZ and it works for me, so there must be a kidney part to my edema. Do you get gastric reflux along with your nausea and belly pressure? The pressing on the diaphragm making it hard to breathe for me happened when my liver was inflamed and large. Also, the pregnant belly can happen from the liver. An abdominal ultrasound is not invasive, its just the baby ultrasound they do when you are pregnant, and it can tell them about your organs and they can see what is enlarged, if you have fluid in your belly they might want to drain, if your liver is alright or causing problems, how your gall bladder is and many other things.
I've been swollen in my left leg bad and it turns out I have nerve damage due to arthritis inmy spine and am getting more surgery. I asked if the nerve not workng could cause the veins not to work. I didn't get a conclusive answer. I also saw a vascular surgeon who did ultrasounds on my legs and determned that the valves in my deep veins are not working to push the blood up out of my legs as well as they should be, and that I have some whole branches of veins that aren't working at all, and he wants to do surgery. Most docs agree I'm too young for this stuff.
Seeing a vascular doc might be a way to track down what is causing the swelling, I want to get the dye injected in the veins to see where the problems are, especially since onekidney is bigger than the other, but I can't get the docs to order it, even though I have positive P-ANCA, which is indicative of kidney and vascular disease.
I don't know if this has been of much help. I think the arthritis in the neck and the swollen salivary gland and cervical lymph nodes and even thyroid problems seem related, to have the same cause, as they all flare up at once an my whole neck is a mess. It comes on like an infection, though steroids help. Oh, on the swollen glands, you need a CAT scan to really tell. If you haven't had one ina while and yur neck is sore, maybe you can get one.
The weight gain can be from liver, I have fatty liver and gain weight easily and just can't lose it as my liver can no longer burn fat, or from thyroid. It's like the whole mess in the neck spreads to the thyroid and the c-spine, causing the arthritis. Ithink that docs investigating disease causes or triggers for autoimmune diseases are really on to something sometimes.
I hope you feel better and that you can get some answers or more tests anyway from your docs. Do you think your hands could be from your neck? Despite my wonderful neck surgeries, my neck is still collapsing and I have a lot of compression of nerves. Also, I got tendonitis from levaquin, an antibiotic, and it really hurt for about a month then went away.
I had to laugh about your legs not being swollen at the docs, that use to happen tome, now they are always swollen, but now the docs just deny that they see any swelling. I hve no ankle bones, duh. They just deny deny so they don't have to deal with it.
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids