Hi redrose. Sorry to here about Alexander's biopsy and possible illness. I missed a chapter here, but know what you are going through. It's so hard when you are sick and not rich. I'm glad he's coming home and I could spew what I think about some of the idiots in the govt but its not very calming. You are right to get past it. I nearly lost my son because I was a single mom and my son got suddenly sick with a swollen neck and I took him to the ER. They wanted to know why Ididn't take him earlier. I told them I took him right away, that his neck swelled up really fast. They didn't believe me and I pulled out a bottle of penicillin liquid dated that day and told them they could call my local clinic because my son had just seen his pediatrician two hours earlier and had no such symptoms.
They didn't care, called social services, put my son in intensive care, gave him loads of iv antibiotics and he got so bad he had to be intubated and nearly died. Allthe time some rich social worker who went to wellesley college and wore huge diamonds and had never had children, was grilling me to the point I called allmy friends and family, who finally flew in. When they topped the antibiotics, they had to, he was gettng worse, all the sudden he started getting well immediately.
The ENT doc, who promised that he'd remove my sons tonsils when he got well, refused to do so, claimingthat it was a one in a million problem, he had no diagnosis still for it, but it would never happen again.
A month later, at my mom's my son got another ear infection. She took him to the doc, who gave him penicillin. In two hours he was in the emergency room of the country hospital, where they figured out that he was allergic to penicillin.
My son has permanent damage from this malpractice by Mass Eye and Ear, he has epilepsy, a common result of penicillin allergy suffered and also from the intubation and respirator not getting adequate oxygen to him.
I was treated like dog snot. I was accused of not gettng medical care for my son, when, if anything, perhaps he got too much care. I was threatened, intimidated, and if my parents hadn't laid down the law with the worker, they probably would have taken my child away and killed him in the hospital.
I hate the doc to this day who hurt my son, he was so arrogant, and so ignorant. I know I should forgive, but since I had no chance to sue, I have a lot of hatred I'm trying to work through. They always call social services and attack the parents when they commit malpractice because they figure if you are being attacked, you won't go after the hospital and doctor and notice how they are screwing up. And if you do object, the social workers use it as grounds to try to say you are unfit. It's so disgusting.
I fully feel for you, Redrose, and I know how hard it is without having that big old family support that other people have, esp. the grandparents. I'm so glad you are handling this sanely and am so sorry you and Alexander had to go through all you have had to go through.
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids