Posted 5/4/2009 9:46 AM (GMT -6)
You are very organized with keeping track of her symptoms, history etc. Your solid foundation in her health issues is crucial to helping the pediatric rhuemy. Your family has a lot of autoimmunity! Wow. That's quite profound actually. I don't think I've heard of so many autoimmune diseases happening in one family. So both you and your daughter's father have JRA? I think that says a lot, don't you? Plus your youngest is showing signs too. Oh my goodness... How are you doing emotionally?
I also have Fibromyalgia. Have you found it difficult to know which issue is flaring? I'm wondering if your daughter might have Fibro too. With her Sed rate (ESR) being in the normal ranges it makes me wonder if she might also have Fibro. Fibro isn't inflammatory, so the Sed rate will be normal. I'm just thinking out loud! It's a lot to take in isn't it.
It could be that her ASD diagnosis is the right one, but that she also has 1 or more autoimmune diseases happening. Again, I'm thinking out loud!
Please keep up posted as to how you're all doing and when her appointment is. We're always here if you need a shoulder to cry or vent on.
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
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