I just hope my sense of humor can get me thru this. Wait a minute (carol is looking for soap box)
They take me off the steroids so I can get a transplant, but they aren't rheumies. All they care about
is my lungs. What about
my joints? The only thing holding me together is the plaquenil. But I have to sleep with heating pads and can't put my jacket on by myself. I wasn't thinking the other day went to throw my leather jacket on and
If i hadn't been in church I can only imagine what would have come out of my mouth. All I could do is bite my lip and had tears rolling down my face. I have a new pcp and I asked her for somthing for inflamation (nonnarcotic). She said to give her a couple of weeks to go over my records. A COUPLE OF WEEKS! Is she insane
. I got a call yesterday to remind me I have an appt this afternoon with a heart dr. because I need a left and right side heart cath. Shoot somebody forgot to tell me about
it. Fortunately it's just a conference. I went to a dr. about
a colonoscopy and the scope in my throat. This guy HATES people. He is in it for the money. I think he decided to be that kind of dr. so he could cause as my pain as possible and get paid for it. He told his secretary to make me another appt: I told her never mind I don't like him and I ain't coming back. I wouldn't let him touch my dog. I don't care if we like each other but we have to be able to work together. He laughed at me and told me my pcp is not a real dr.! That he know everyone and he doesn't know her. So when I went to her office I got about
5 cards which said not only is she a MD but her dr. is a specialist!. So I'm sending him a card. With a note on the back. (use your own thoughts there). Thursday I have to go to pulm. therapy to talk to the dr. about
a program. MWF will be my days for exercise. I don't know when I will have time for all the other appts.
In the mean time my ankles hurt to walk. my big muscles hurt. My I can't raise my arms. I can barely sleep because of the pain. I just don't know if I can do this.
I guess one day at a time.
love ya guys.
Don't feel ya have to answer I'm just ranting.
Possible scleroderma. stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix ,pot.chlor.,B12 ,iNDEROL
Bear ye one another's burdens
Galatians 6:2 KJV