Jenna, I can relate to everything you said - have experienced most of it at one time or another over the years. Please be strong and don't let doctors or others (family, friends) minimize your complaints, or chalk them all up to a "head" problem, and worst of all, make you feel bad about yourself. Keep looking for a doctor who will listen, and take you seriously. You must demand this. Especially with 2 little boys to raise. Your are on the right track with your rheumatology appt. and please be sure to take pictures of your rashes, eye inflammation, the little red dots, facial redness etc. because more often than not, when your appt. time rolls around, everything is gone or minimal. It's very helpful for diagnosis, and something I wish I'd known to do before I learned about it here.
You will find tons of support and information on this forum. I have found it so helpful in a kazillion ways. Most importantly you learn you are not a nutcase and you are certainly not alone.
Hang in there and learn all you can before your rheumatology appointment. And welcome!
diagnoses: mono 1972; postviral CFS 1997; fibro 1998; UCTD (dx limbo) 2007
meds: Plaquenil 400 mg, occasional low dose xanax for sleep aid, artificial tears w/ ointment at night, Advil/aspirin prn