Triple Appointments tomarrow

Go to my radiologist tomarrow to see if I need to continue radation (I am pretty sure the answer is yes I need more, as my pcp told me the tumor only shrunk a tiny  bit). Go my oncologist appt tomarrow (to hear another yippie we dont know what autoimmune disease you have). Go to my presurgery appt tummor (that has not been put a date and I just do follow ups as the radiation is interfering with when they can operate).

Yippie yay.....not

Keep me in mind, I will post back tomarrow afterwards.

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Smurfy Shadow/Desirèe 

DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis

Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl

Undergoing Radiation Taking Lorazepam (Ativan) on Radiation Days

Oh, my. Just the thought of 3 such appointments in one day makes me tired. I will think of you, and I hope you have a supportive adult available to take you. Good luck, remember to take breaks to eat and rest and drink water - it'll help keep all that stress from seeping too deeply into your system. Lynnwood, Co-Moderator: Lupus Forum SLE (’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1 Plaquenil, Prednisone( 15 5mg), Piroxicam, Xanax, Trazodone, Boniva, Wellbutrin, Valtrex, Vicodin, Prilosec Links: Diagnosing Lupus (4 of 11) , Lupus.org Info , Lupus Resources , Help HealingWell , Drug Interactions Life is far too important to be taken seriously. –Oscar Wilde, 1882

Yowsa!! I hope you managed alright today Desiree !! Will be thinking about you and watching for an update. I'm sorry the tumor isn't shrinking faster. *sighhhh* I hope the radiologist and oncologist can give you some encouragment. Blessings! In His Grip AlwaysRosie              " We can't control the waves, but we can learn how to surf!! " Psalms 139 Co-Moderator - Lupus Forum UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08) Clickable Links:   Lupus Resources     Lupous.Org    Lupus Criteria (4 of 11)    Lupus Chapter Locator

Sorry it took me so long to post the news, I took a nap    I was tired. I've found with everything its I'm more tired and can't do so much anymore. Are we all like this? Radiologist--I graduated radiation for at least 6 months!!!!!   Surgeon - Decided to operate, and will schedule 3-8 months away (something about needing to talk to the radiologist first cuz radiation could interfere). Oncology- I knew the day was too good to be true! He decided to have me do chest xrays, blood work, peeing tests. He's leaning to confirming the Wegner's disease. He says it looks like I will need agressive treatment (I sure hope I dont have to do chemo again). I am to call the doctor on Monday to find out my results. If I pass the xrays, blood and pee tests, I can have a 2 month break (or so he says).  My eye, where the tumor is, is super duper sensitive to eye drops. Nurse didnt believe me til she saw. Ever get in so much pain your grabbing the painful spot, rocking, instant tears and stop talking and gasping for air cuz the pain is so intense? Trust me, its no joy. I scared the nurse at least. She felt really bad for putting eye drops in. I had to even take a pain killer    Well thats my story, til Monday!

 

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Smurfy Shadow/Desirèe 

DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis

Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl

Undergoing Radiation Taking Lorazepam (Ativan) on Radiation Days