Posted 5/12/2009 10:50 PM (GMT -6)
My doc talked to me today about the retroaortic left renal vein problem and is referring me to some vascular surgeon guys. She said it can be a sign of diseases, cancer, and lupus were mentioned. She wants a biopsy of my butt lymph node to test not only for cancer,but disease. Finally. I think if they can't find a definitive disease or problem they willat least give me a lupus dx, if only so I don't need to list everything separately.
I broke down crying, telling her that I have so many separate medical problems that when I see a doctor, I can't remember them all. I haveto get some fixedso I can cross them off the list. My dementia is getting bad now.
I also have multiple nodules on my left thyroid, where I had just one. They were goingto bx them a year or two ago then decided not to. So now I have to get a hold of my OB and get a referral to an endocrinologist. My crappy endo called me today and I told her nurse flat out that she was lousy doctor and never did anything to help me at all, and she denies any MRI info or labs that say I have anything wrong besides mild thyroid, and she said Mayo was wrong (My ob/gyn said mayo underdxed me), she said they overdxed me and would not raise my thyroid meds when necessary.
I am so sick of doctors. I wish theywould just call it a one word thing like lupus, so I wouldn't have to remember so much.
I guess the renal vein thing can be from nephritis, like lupus nephritis. I only have it on one side, the other seems to compensate. I'm so tired too. Does anyone else have this problem of remembering? I guess the renal vein is why I had such bad endometriosis. It is a rare deformity. I just pray they fix it. I can't live with the UT pain anymore and leg pain andswelling. Its just one problem too many. Sorry to unload, just really tiredof these weird problems and just worn out. I feel like I'm on the downhill part of the journey now.
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids