Jenna - The rheumatologist is who you need to hear from and be tested by. I think everyone agrees your doctor is not a part of the solution to your puzzle. I have been seeing a rhuematologist for 1 1/2 years. My ANA is consistantly positive and high, but I don't have other positive markers via other antibody markers in the blood (as yet). My rheumatologist keeps testing for those every 6 mos. or so, as she believes my symptoms indicate something in the AI family will be "landing" and eventurally turn up the specific disorder I have via blood test. But my symptoms and the positive ANA were enough for her to treat me with Plaquenil. So your doctor is wrong to tell you, based on one ANA and one other test for Lupus - that you don't have it. The rheumatologist - a good one - is who you need. I know it's hard to wait - I think you said your appt. was in July. In the meantime, start looking for a new primary care doctor - this one is not worth your time and energy. And keep reading and learning. www.Lupus.org is a great source of information. You may not have lupus - but you've got something going on with lots of corresponding symptoms that need to be thoroughly evaluated. Hang in there!
diagnoses: mono 1972; postviral CFS 1997; fibro 1998; UCTD (dx limbo) 2007
meds: Plaquenil 400 mg, occasional low dose xanax for sleep aid, artificial tears w/ ointment at night, Advil/aspirin prn