DR. said- I Don't have Lupus right now...

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Regular Member

Date Joined Apr 2006
Total Posts : 169
   Posted 5/21/2009 1:20 PM (GMT -6)   
Hi, I finally went to see a new Rhuemy, last week.  I've had to reschedule a couple of times.
I had an Othamologist (eye dr) and Rhuemy same day.  I been having vision problems too.
Well, I think I liked this Rheumy better.  Dr. wanted to know my whole history of symptoms, I gave him the year and symptoms for all the years since 1999.
I became kind of confused and had a hard time remembering some of them, I did remember some of the newer symptoms when we left.(aaargh). 
DR's first question to me was had I had any pshycotic episodes? Seizors?, I never have.
Then he said-I don't have Lupus, but you do have Myalgia.  He didn't explain what that meant.  (I know now).  All my symptoms he documented on computer.
DR. said he wanted to try a no medicine treatment for me, yet he gave me Flexiril (sorry sp.)  I've been taking Bacoflen too.
This Dr. did say there is a good chance of me having Lupus, since my mom had it, and my brother has A-plastic anemia. 
I told him about my back/left side pain, which I have trouble when walking cause left hip will hurt real bad, I asked him if he could take an X-ray of back, he said-You don't have a broken bone, so you don't need one.
Dr. didn't say anything about follwup visit, only ordered urine and CBC test.
I asked about the protein found on urine, he really didn't say much.
For last two years I feel like my symptoms feel like MS more than Lupus, maybe I'm right, how should I bring this up w/new DR.?
Sorry so long

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 5/21/2009 8:39 PM (GMT -6)   
Hi, it sounds like this doctor doesn't have a good bedside manner. One suggestion I do have is, always make a list of your symptoms for the doctor before the appt, I have learned not to trust my memory and write everything down. He doesn't seem like the kind of doctor that would appreciate the patient making dx suggestion such as MS, etc. I think I would leave that up to your PCP to refer you to a Neuro or wait a while and see what your labs look like and see how your symptoms are over time. Lupus is very hard to dx and it usually takes a while unless you have serious organ involvement.

Give the doctor time to put it all together, I know it's hard just hang in there, keep your appts and always communicate with your doctors.
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Tramadol (as needed) and magic mouthwash (for mouth sores)

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 5/21/2009 8:43 PM (GMT -6)   
(((((((( Syl )))))))))

There are a LOT of us who have been dx'd and undiagnosed. Each doctor tends to want to see enough criteria with his/her own two eyes to get in into his/her chart. Some of our meds do hide the +ANA too. I wonder if he is making sure that the meds are needed. But I cringe at the thought of being off of plaquenil too long and then waiting for it to build back up in your system again. Were you taking plaq?

I must have everything printed out before the appointments. Even if its a short list with two items. I just can't think when I'm in my appointments. Sorry you had trouble remembering all you had to say.

Make sure to give him a shout at the first sign of a flare. OK?


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

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UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

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