Posted 5/21/2009 11:20 PM (GMT -6)
This "retroaortic left renal vein" is supposed to be common in lupus and cancer patients and causes nephrotic syndrome. I'm in a ton of pain now and have beenso long I'm going nuts from it. My new primary care doc thnks that because my retroaortic left renal vein is "of common variant", which means it takes the most usual path between two arteries, that it is not abnormal and doesn't need any testing or treatment. It is ridiculous. I gave her several articles about howit can cause death from aneurysms, causes kidney and adrenal damageand loss, causes destructions of lower veins, development of other not normal vein routes, and besides all that, it hurts like the dickens!!!!
First she was going to refer me to a vascular guy, then decided, without me going to see them, that it would be a waste of time, since she decided nothing is pinched because she hasn't run any tests to determine if anything is pinched, despite my symptoms. Then she said I should see a nephrologist instead. Well now she decided she isn't doing that, despite my hx of kidney problems as a child and symptoms and positive p-anca. She's doing no bloodwork, no venogram, no nothing, AND she sending me for a big shot of cortisone which will really mess me up, last shot I went into addisonian crisis.
So now I guess I sit back and wait for nephrotic syndrome. Can anyone tell me what the symptoms are? What should I do about my doc? You can't fix stupid. Is a caring doc so hard to find? Oh, and I still don't have lupus. ;) Just sjogrens and 13 other disorders common to lupus.
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids