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Regular Member

Date Joined Nov 2008
Total Posts : 52
   Posted 5/29/2009 4:16 PM (GMT -6)   
Hi guys.  I am new to this forum.  I have a few questions maybe some of you can answer.  I went to my Rheum. yesterday and he is ordering a lupus panel, ana screen, alt, albumin, cbc, and many more test.  I think he suspects lupus.  Some of my symptoms are light and heat sensitivity, dizziness, joint pain, flushed skin, reoccuring urinary infections.  I have a butterfly rash that they said was roceasa.  Also in the back of my throat I have like little pimples on it.  I have never had them before.  I do not know what mouth ulcers or sores look like.  The thing is I would like to know why I feel like crap all the time but I do not know if I am ready for a lupus diagnosis.  Most of my other doctors think it is the stress that I am under I don't think stress would make me feel this way.  All I have to do is say that my daughter is autisic and they blame it on stress.  Even the rheum did.  I just feel like screaming.

Veteran Member

Date Joined Mar 2006
Total Posts : 2607
   Posted 5/29/2009 4:43 PM (GMT -6)   
Ann e,

I believe that stress is what caused my lupus to flare in the first place. We had suspected a quiet case of lupus for a couple of decades but it was after a very stressful time in my life that I became very sick.

And even though you may not be ready for a lupus diagnosis, there are meds that you might benefit from. Plaquenil, for example, can help slow down the progression of the disease. And with the right meds, you mght not feel as bad as you do. Wanting to scream is something that most of us who have been in diagnosis limbo have felt many times. It is frustrating. And one of the most frustrating things about lupus is that it changes every day and no two people have exactly the same symptoms or experiences. We all do feel frustration, however.

I hope you can get some answers, and I hope you enjoy being a part of this little online family. We're here for you.

SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex

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