Hi Jeannie, before I was diagnosed, I used to run 10 miles a day. I would come home and take care of my baby and work at night. Then I started with symptoms. They get better ...they got worse. I am now 51 yrs old and my symptoms have gotten worse these past 4 yrs. The loss of myself is what is the hardest to accept. The weight gain and water retention is rough. I used to be very thin, toned and full of life
. Prednisone really does little for me when I am in a flair. In truth, THE thing that works is sleep. Accepting that I need to take a nap when I get home from work is hard. That seems stupid when I step back and look at it, but it is just one more thing that gets in the way of who I used to be. Slowly I am learning to accept what is and look for the blessings in the moment. This disease has strengthened my faith and sometimes after a really bad spell(like I recently had), things taste and smell better! Holding my grandbabies is indescribable! Does this make sense? I hope so. Blessings to you. Tammy
I have SLE, Raynauds, mitrol valve prolapse,Haushimotos thyroiditis.
Meds I'm on are Prednisone, Vitamin D, Hydroxchloiquin, amitriptylin, levoxyl, colchcine, mobic, flexeril, and lyrica
Rom 8:18-19 "I consider that my present sufferings are not worth comparing with the glory that will be revealed in us."