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alli sunshine
Regular Member

Date Joined May 2009
Total Posts : 40
   Posted 5/30/2009 9:33 PM (GMT -6)   
I was looking through old posts and came across a thread about vitamin D. (First want to say that I am waiting for my first rheumatologist appt., no official diagnosis.) When I had my routine bloodwork done in December, I had her check my vitamin D levels because I had melanoma about 18 months ago, and I get very little sun exposure. My levels came back terribly low. I had a vitamin D3 level of 7. That is not a typo, it was 7. I had been experiencing terrible bone pain for a couple of months, but I attributed it to my back issues. (a good deal of my spine is fused) Anyway, she had me start taking 1000 units a day. This seems much lower than what some of you mentioned. She has not rechecked my levels because we know they will still come back low. Can those of you taking this tell me how much you are taking and what doctor prescribed that for you?

I also want to say thanks for the warm welcome. You all are so very kind.

Veteran Member

Date Joined Jun 2008
Total Posts : 675
   Posted 5/30/2009 11:04 PM (GMT -6)   
Hi Alli, and welcome!  I'm taking 50,000 units of Vit D once a week for 8 weeks.  It was Rx'd by my rheumy.  My level was 9 - not much higher than yours.  I'm supposed to take it so that I can begin taking a biophosphate for osteoporosis - as apparently the body needs adequate Vit D to absorb the calcium. 
This isn't my first go round w/ Vit D.  I had to stop the 50K dose after the third week about 2 yrs ago because of increased muscle pain and spasm.  Last year I tried 1000 per day and did much better with that and it did bring up my level slowly but surely, however there was a controversy about one of the re-tests after 2 mos., indicating I had too much Vit D and I was told to stop supplementing.  I'm beginning to think it was just a snafu with the lab (different one for the retest)  since my level is right back down there again. 
At any rate, I'm back to trying the 50K dose weekly - 1 down and 7 to go.  If the same side effects occur - I'll switch to 1000/day.  As a rule my rheumy has done a re-ck after 2 mos of supplementing.  I stay out of the sun as well.
Good luck with your rheumy appt!
diagnoses:  mono 1972; postviral CFS 1997; fibro 1998;  UCTD (dx limbo) 2007
meds: Plaquenil 400 mg, occasional low dose xanax for sleep aid, artificial tears w/ ointment at night, Advil/aspirin prn

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 5/31/2009 5:15 PM (GMT -6)   
Hi Alli, I too take 50,000 IU of Vit D. My rheumy is the one who prescribed it for me as I can't be in the sun and it's something she started checking on all of her patients along with B12. My vit D was low, I think like 24, not too terribly low but enough to start on meds. I should also be taking extra calcium but I forget.
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Tramadol (as needed) and magic mouthwash (for mouth sores)

Regular Member

Date Joined Mar 2009
Total Posts : 31
   Posted 6/1/2009 7:11 AM (GMT -6)   


I take 50,000iu of D3 daily.  I was taking it weekly and my levels dropped to 18.  I have been on this dose for a month.  I am having it rechecked in a week.  I also have psoriasis and malabsoption problems that add to my VitD defeciency.        I hope you get yours up soon.  I am hoping it will help with some pains.

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