My Blood test results....

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Regular Member

Date Joined Oct 2008
Total Posts : 261
   Posted 5/30/2009 10:10 PM (GMT -6)   
Ok...I heard back from my dr and my ana was negative this time! Everything was normal except my CPK. Apparently it was elevated back in march as well but no one ever told me. A normal reading is between 50-100 and mine was 277 back in march and 352 this time with the tests done at hopkins. My dr wants to do more specialized antibody testing when I go back in june to check other parts of the cells since the ana only tests the cell nucleus. I also am getting treated either way when I go back but what these tests show will determine what type of treatment we will start. She said she can only say it is a pain syndrome at the moment because we dont have enough proof of whether it is even autoimmune or not. I will not just be treated with a narcotic which I am glad of. She said some people come to her like me with symptoms and non-specific tests and go on to develop lupus or something like it and some dont. So its watching and waiting some more :/ I am not really thrilled about this but what can i do? lol I just hope we can get something figured out soon. If anyone has been through this or has any comments etc please let me know! Oh and my muscle strength is fine so were not even sure if the CPK is signifying actual muscle damage or not. Hope everyone is well. *Hugs* -Brittanee
*Wifey & Mommy*

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 5/31/2009 5:19 PM (GMT -6)   
Hi Brittanee, we all remember how frustrating it is waiting for dx of some kind ((((hugs )))))). All I can say is hang in there, keep your appointments and a diary of your symptoms and always keep your doctor well informed of how you are feeling and all of your symptoms, even the ones that seem small and insignificant. Take care and keep us posted on how you are doing.
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Tramadol (as needed) and magic mouthwash (for mouth sores)

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