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Barbara Lee
Veteran Member

Date Joined Sep 2003
Total Posts : 2889
   Posted 5/31/2009 6:50 PM (GMT -6)   
Hi Everyone:

Just wanted to drop a quick line to let you all know I'm home. It's been a long 3 weeks for me and I'm totally wiped out. I went to Minnesota to be with my Dad while my Stepmom went to Ireland, Scotland, and England for 3 weeks.

I had to do everything for my father, he's almost totally dependent. I had to take 50mg of pred a day to manage to make it through. I got the feeling that I may not see my father alive ever again. He's in terrible shape and he's disheartened by his condition. I think he's been holding on just to see me. He also had to come face to face with how sick I am too.

While I was away from my home, my 16 yr old daughter was bitten by a copperhead snake and thankfully she's fine. She had her first date and dyed her hair while I was gone. Seems I missed out on a lot of things LOL.

Anyway, I'm home and hope to catch up on much needed rest. I see my Internist tomorrow and on Friday I'll start my first dose of Remicade to treat my RA. I'm hoping that it doesn't affect my lupus. Well I'm gonna close, hope you are well and having pain free days.

dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 5/31/2009 7:24 PM (GMT -6)   
((((( Barbara )))))) I am glad to hear you are at home but saddened by your dad's condition. Take it easy at home and get plenty of rest. You and your family are in my prayers. Hugs and luv to you!!!!
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Tramadol (as needed) and magic mouthwash (for mouth sores)

Veteran Member

Date Joined Jun 2006
Total Posts : 1650
   Posted 6/1/2009 6:36 AM (GMT -6)   
Hi Barb! It's great to hear from u. I'm so sorry u had such a tough time taking care of ur dad, but I'm glad u got to spend time with him. Nikita was really busy while u were gone :-)   Tory went thru phases of black, purple, stop light red, and pink hair. Anyway, I hope the Remicade goes well and ur much needed rest helps u feel better. (((Hugs))) Love, Donna
Systemic Lupus ('05), depression, fibro, cns issues, sjogrens, diabetes, gerd, hypertension, IBS, stage 1 kidney disease, Rx: Cellcept, plaquenil, prednisone, celebrex, lisinopril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin, xanax, ambien, actonel, tylenol arthritis, neurontin, flexeril, nasonex, phenegren, swish & spit, vitamins, fish oil.  Acupuncture  "Welcome to lupus, where the strange is ordinary and nothing is normal." Donna 

Julia Hill
Veteran Member

Date Joined Mar 2008
Total Posts : 562
   Posted 6/4/2009 10:52 PM (GMT -6)   
Hi Barb,
I'm glad you made it home safe and sound.  It sounds like you need to catch up on your rest.  I hope your remicade treatment goes well tomorrow, I will be thinking about you.   I will call you over the weekend to see how you are doing.
Love Julia

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 6/5/2009 9:02 AM (GMT -6)   
Hi Barb!

It's so good to see you back here again and know that you survived the trip! You're an angel to take care of you dad like you did. I know it's hard to watch Nikkita grow up, but it doesn't mean she won't still be close to you. My daughter is 21 and very independent, but we're closer now than we've ever been. So the best is yet to come.

Take care and get some rest. I hope you're recovering from your trip.


SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 6/5/2009 3:40 PM (GMT -6)   
Welcome back. I am sorry to hear about your father, my grandfather held on just long enough to see me when he was dying of cancer so I know what you mean about him hanging on to see you. I do not look forward to first dates, the idea scares me and makes me feel old since it will happen in the next few years for my oldest (she will be 15 this year). I hope the new medicine works, is that the IV one I forget. I dread the day enbrel stops working because then it will be IV meds and I hate IVs.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar

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