Like Pat I always feel badly, but certain symptoms become worse and sometimes horrible. So here goes: It starts with fatigue that sleep doesn't help, followed by a strong, diffuse pain at the back of my neck. Next I become so weak that I am SOB from walking up the stairs to my bedroom. Then the pain spreads over my body. Often elbows, shoulders & feet hurt. My tremmors, balance, clonic jerky movements & stuttering worsen. Brain fog makes concentration very difficult. I get sores on my tongue. When sjogrens is bad my mouth, nose & skin dry to the point of spliting. I get keloid sores at the corners of my mouth. My vagina is dry in a league of its' own. My mental health is maintained with prozac, wellbutrin, seroquel & ambien. Oh, a side note: I always take my meds. I spent two days in a mental health facility for attempting suicide during my undiagnosed phase. The facility sucked big time so I learned my lesson.
I have prescription drugs I use as needed for mouth sores, keloid sores, splitting skin. Over the counter for dry mouth I use Oral Balance, Biotene toothpaste, mouthwash without alcohol. For dry skin I use Eucerin cream. Systene for my eyes. I've been flaring lots lately (like now), but it only lasts 2 days. Depression and Sjogrens is on going. If you've read this far you should get a commendation. As always to all my lupus sisters, I send lots of love. Butterflake
Systemic Lupus ('05), depression, fibro, sjogrens, cns issues, diabetes, gerd, hypertension, IBS, stage 1 kidney disease Rx: Cellcept, plaquenil, prednisone, celebrex, lisionpril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin, xanax, ambien, neurontin, tylenol arthritis, flexeril, nasonex, phenegren, vitamins, Acupuncture. "Welcome to lupus, where the strange is ordinary and nothing is normal." Donna