low WBC...off of cellcept for a week...nupogen works for little while then WBC drops again

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New Member

Date Joined Jan 2007
Total Posts : 17
   Posted 6/9/2009 12:41 PM (GMT -6)   
I had my kidney transplant end of Feb. My WBC was recently very low at .7 a week and a half ago.
They took me off cellcept completely (was on 1000 mg twice daily) to try and raise it along with nupogen shots. Ive had three shots in last week. Ive gotten the WBC count up to 2.4 but over the weekend it dropped again to 1.1
Im freaking out now since the doctors are perplexed.
I lost the kidney due to lupus. Also have had arthritic symptoms lately as well.
Does anyone have any feedback about why my WBC won't rise?
Im worried I might have leukemia or HIV now.
Thank you for any information.
Cellcept, Felodipine, Labetelol, prednisone 15mg, Aranesp, aciphex, dycyclomine

Veteran Member

Date Joined Jun 2006
Total Posts : 1650
   Posted 6/13/2009 5:54 PM (GMT -6)   
Hi Haji. I'm sorry no one answered u yet. Anytime the docs are perplexed it can be scarry. Try not to worry about things like leukemia or HIV. Your WBC might be suppressed from some other viral infection. Have u seen a hematologist? Your docs may have consulted with one, but if they haven't ask to see one. I don't know if an infectious disease doc would help, but ya never know. I sure hope u find the cause soon. Being placed in hospital isolation would help keep u safe while ur white count is so low, but I hope it doesn't come to that. Lots of hugs, Sweetie. Love, Butterflake

Systemic Lupus ('05), depression, fibro, sjogrens, cns issues, diabetes, gerd, hypertension, IBS, stage 1 kidney disease  Rx: Cellcept, plaquenil, prednisone, celebrex, lisionpril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin, xanax, ambien, neurontin, tylenol arthritis, flexeril, nasonex, phenegren, vitamins, Acupuncture.  "Welcome to lupus, where the strange is ordinary and nothing is normal." Donna 

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