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Melissa D.
Regular Member

Date Joined Aug 2008
Total Posts : 448
   Posted 6/14/2009 1:03 AM (GMT -6)   

Hi Everyone,

I am have the strangest thing, my tongue is so sore and covered in red dots/spots! It hurts so bad, it burns and stings constantly and of course worse if I try to eat or drink  mad   I have garged/swished with baking sode and warm water, but it has not helped at all.

Has anyone experienced this? If so, what have you done to relieve the pain?

I guess I will call one of my docs on Monday, but in the meantime, I seriously don't want to eat or drink anything because it hurts so bad.

Any advice you have is appreciated!

Lupus - 1997   Fibro - 2001    Sjorens  -  2007   Raynauds  -  2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis

Veteran Member

Date Joined Mar 2006
Total Posts : 2607
   Posted 6/14/2009 11:00 AM (GMT -6)   

That happens to me from time to time and it's miserable. Popsicles can be soothing but I don't know what makes them go away. The strange thing is that my last two rheumys tell me that mouth sores (I know you're not talking about mouth sores here, but it seems to be related) in lupus are not painful. I frequently have painful sores and others that don't hurt, but just aggravate me.

Let us know what your doctor has to say!

Hope it gets better real soon.

SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex

Veteran Member

Date Joined May 2005
Total Posts : 7720
   Posted 6/14/2009 12:56 PM (GMT -6)   
"Mouth sores in lupus are not painful" --- I'm sorry, but unless those drs have lupus, I maintain a healthy level of skepticism!
Lynnwood, Co-Moderator: Lupus Forum
Life is far too important to be taken seriously. - Oscar Wilde, 1882

Veteran Member

Date Joined Jun 2008
Total Posts : 675
   Posted 6/14/2009 1:26 PM (GMT -6)   
I find that sometimes the mouth sores are really painful, especially just coming on, and other times not so much.  I do think the sores on the tongue are more painful and harder to ignore.  Someone told me the tongue soreness could be related to yeast....anybody have comments on that?  I know that walnuts and high acid foods can trigger problems for me.
Sorry - don't know why this font is so large - can't seem to change it.
diagnoses:  mono 1972; postviral CFS 1997; fibro 1998;  UCTD (dx limbo) 2007
meds: Plaquenil 400 mg, occasional low dose xanax for sleep aid, artificial tears w/ ointment at night, Advil/aspirin prn

Robert Logan
New Member

Date Joined Jun 2009
Total Posts : 2
   Posted 6/29/2009 4:03 PM (GMT -6)   
There are two common causes of sore tongue with red dots.

The first is excessive consumption of citrus fruits, especially pineapple.

The second is excessive consumption, usually unwittingly, of MSG. Excessive quantities of MSG are used at most restaurants so if you eat out beware and also in processed food. If you avoid MSG eventually your sore tongue will go away and if you continue to avoid MSG it won’t come back. Read all ingredient labels carefully and look at the sodium content listed in the nutritional section.

Take care,


Veteran Member

Date Joined Jun 2008
Total Posts : 675
   Posted 6/29/2009 4:58 PM (GMT -6)   

Hmmmm....interesting.  I hadn't realized the MSG could impact the tongue - isn't MSG a kind of yeast?  I try to avoid it when eating out or in processed food, but - you almost need to be a chemist because it has many aliases.   My favorite dessert salad contains cherry jello, pineapple, apples, fresh cranberries, celery and walnuts - I still eat it once a year or so - and it never fails to produce pain afterward - somewhat lessened by the addition of real whipped cream tongue

I think the mouth ulcers on the palate, inside the cheeks, gums, etc. are of a different sort - and may be more directly linked to lupus.

Thanks for the input Robert - and welcome!


diagnoses:  mono 1972; postviral CFS 1997; fibro 1998;  UCTD (dx limbo) 2007
meds: Plaquenil 400 mg, occasional low dose xanax for sleep aid, artificial tears w/ ointment at night, Advil/aspirin prn

Regular Member

Date Joined Feb 2006
Total Posts : 186
   Posted 7/3/2009 2:26 PM (GMT -6)   
It could be a variety of things.... from my experience..

1) Too much citrus
2) Allergic reaction to another food
3) Allergic reaction to meds
4) Yeast/Thrush (white bumps on back of tongue for this one?)

or this one was my major factor... I don't get it anymore because I eat better and take Vitamin D..

My tongue would get big red "patches" where it looked like I had "lost" a layer of skin on my tongue! Came on fast, hurt like hell, and made eating/drinking suck. It is called "Geographic Tongue" and it is linked to nutrition deficiency, more common with people with Diabetes.

You have Sjogrens, so it could also be associated with that. I would take a pic for your next visit.. If you have a web cam on your computer/laptop, you could always save it in a file?

good luck
"There is a little naughty monkey in all of us!"
Mononucleosis / Chronic Fatigue Syndrome 1991, Depression,Endometriosis 1994,Costochondritis,Stage Two Dysplasia 1994,Asthma 1995,Tonsilitus 1999,Lupus Jan 2004,Migraines, Interstitial Cystitis  2005, GI Bleed/problems 2007.
Rx:Hydroxycloroquine (Plaquenil) 200mg 2x/day,Hydroxyzine HCL (Antihistamine) 25mg 1-2 pills at night,Albuterol Inhaler  taken as needed, Acidophilus tablets 1billion CFU, Cabergoline 1x/wk, Valtrex 1gm/daily, Vit D 2,000 IU daily, Calcium/magnesium supplement, Senna-Lax laxative daily.

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