Hi Jess, bless your heart. You shouldn't have to deal with this but I can tell how much you love you mom. Is your mom on any meds now? It's hard to try to tell you where you should go for help because there are so many different situations in peoples lives.
First off I will tell you that there is absolutely possitivly without a doubt ton's of hope and you can tell your mom I said that. You can also suggest she join the group. This is a great support group. Lupus is not the killer disease that it used to be. There are many good drugs out there that help with pain swelling inflamation, depression,(it goes with the disease).
Yes I can relate to the changes in medical assistance. If you check at the top of this forum you will find many places you can check out and make phone calls and your mom will probably be able to qualify for. I live in oklahoma and they have a program called sooner care for low income people. Yes you do have to get referals but once you get the hang of it it's not so bad.
Has your mom been diagnosed for sure or are they working on it? even if it's up in the air most drs. will give you meds for the symptoms. It's amazing how a small amount of steroids and plaquenil can change a life.
Hang in there and take time for yourself. I doubt your mom want you hanging out with her all the time. You are young you need to have a good time. Don't feel quilty. Sometimes we just want to lay around and sleep or watch t.v. and really don't need the company anyway. Somtimes we get sad,angry, tearful, it's hard to except that this disease takes away a lot of who we are. But like I said this group is here for you and her. I hope you both take advantage of it.
keep us informed and don't forget to check the links at the top of this group.
Here jess I decided to pull these down for you. hope something helps. Call them aand ask questions tell them you really need help.
And . . . another provided by Okie
scleroderma. stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Detrol LA,spironal,Lisinaprol,furosemide,azithromiazin,plaquanil,pottassium,Citrocal,vicodin,percocet,tons of inhalers.
Bear ye one another's burdens
Galatians 6:2 KJV
Post Edited (okie) : 6/18/2009 12:36:19 AM (GMT-6)