butterfly rash?

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Sugar magnolia
New Member

Date Joined Jun 2009
Total Posts : 1
   Posted 6/19/2009 5:16 AM (GMT -6)   
Hi, I'm new here.  I have been living with two autoimmune disorders for many years (RA and AS) and in the past year I have noticed a Bozo the Clown look to my face, it's not a raised rash, it's painless, but it's worrisome, I would rather not deal with another strange illness.  It is on both cheeks and between my eyebrows, it is made worse by the sun, which is unfortunate since I live in the Florida Keys.     Another weird thing happened when we went on vacation to Costa Rica (very hot sun!), I broke out in hives and turned red from my neck to my knees, even skin that hadn't been exposed to the sun.  Ii took 5 days and 2 doctor visits to stop the itching and pain, and obviously it wasn't much fun.  I go to a general practitioner down here since the nearest rheumy is 50 miles away, and she has suggested ruling out lupus. My feeling is that I've been coping with the other two conditions a long time, the treatments for lupus are somewhat similar (the dread pred), and I'm not sure I want to know there's yet another thing wrong with me.  But some meds are not compatible with Lupus so there is that to consider.  Anyway, is this the type of butterfly rash I've always associated with Lupus?  It is not exactly on the bridge of my nose, a bit higher, but definitely bright red cheeks.   Any suggestions/advice will be appreciated

Veteran Member

Date Joined Jan 2004
Total Posts : 4151
   Posted 6/19/2009 10:52 AM (GMT -6)   
Hi Sugar magnolia,

Welcome :) I would really suggest seeing a dermatologist if you can. I find that they know a lot more about even auto immune rashes. My rheumy wanted me to get confirmed with my dermatologist when she suspected I had SCLE and so my dermatologist confirmed it. I'm hoping you have one of these docs closer to you.
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007, Localized Scleroderma 2009
Meds: Plaquenil 400mg/day, Pred 2.5 mg/day (tapering), Methotrexate 10mg/week, Hydrocodone PRN, Fiorinal PRN, Baby aspirin, Prenatal Multi, Vit E, B12, Fish Oil, Biotin, Calcium, Folic Acid

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