I understand so how hard it is to be helpless over a child esp one who is in so much pain. My daughter who's 9 has had anemia, joint aches (crying pain), fatigue, fever of unknown, rashes, now malar is starting after sun, and + ANA since she was 3. Her docs response virus and growing pains. He also said that if it cont into puberty than prob lupus but I wont be waiting around that long. Im waiting for the malar to come full blown and take her to another doc. Im sorry for your grand dtr and your family. Hope they find out something soon to get her out of missory (sp) sorry bout that my brain gets these little air pockets and I forget how to spell sometimes.
sle 92, fibromyalgia 95, t4 fracture 06, hyperthyroid with nodules 05, pernisious anemia 04,
? lupus vasculitis lungs, osteoporosis, c3-4 t1 herniated disks 00, gerd, depression
APLS, hyperthyroid, thyroiditis, complex thyroid nodules, asthma, stiff heart with 4 valve regurg., hemolytic anemia, supraventricular tachycardia
meds:prednisone, plaquinil, imuran, hydrocodone, flexeril, ibprofen, asa, fosamax, prilosec,