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New Member

Date Joined Mar 2009
Total Posts : 11
   Posted 6/22/2009 2:40 PM (GMT -6)   
I am so gonna pull my hair out I just want to wake up and feel normal whatever the heck that is.So I over did it and threw myself right into a flare.Every gland in my body is swollen I can't eat cause the ones in my neck are making it very hard to swallow I can't afford anymore weight loss I am down to 94lbs.All my joints are killing me I can barely walk.My stomach is hurting so bad I can feel it in my chest which was already inflammed by the way.I have absolutely no strength wondering how I'm gonna work the next 5 nights.I don't think I could get anymore miserable and my anger at all this really isn't helping.So sorry for ranting It's just no one around me understands and I'm frustrated.I am just supposed to grin and bare it all the time well not today. Thanks for listening and I hope everyone is doing well I haven't been around for a while.

Regular Member

Date Joined May 2007
Total Posts : 482
   Posted 6/22/2009 4:22 PM (GMT -6)   

Rant and rave all you want. This disease is so draining and frustrating. I am sorry you are going through such bad time. Take a deep breath and remember that you will get through this. Sending good thoughts your way.
Take care,

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR.
Daily Supplements: Calcium, B-100 Complex.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.

Angel MJ
Regular Member

Date Joined May 2009
Total Posts : 36
   Posted 6/22/2009 4:59 PM (GMT -6)   
aaargh ... just lost my reply but here goes again

lilbitz ... that is exactly how i feel (except the 5 nights working - good luck) please i also want to be normal (???) what ever that is indeed!
so ***big hug*** deep breath in & let it out!
that is how we get thru ... one breath at a time! (shallow if it hurts too much)
do you have any meds that can help thru the roughest of it?
Hang tight!

New Member

Date Joined Mar 2009
Total Posts : 11
   Posted 6/23/2009 1:18 PM (GMT -6)   
Hey guys thanks for the hugs and support.I am feeling a little better today.Angel no I don't have any meds to get me through I have a load of allergies so I have a hard time taking most things can't even take the Plaquenil.

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 6/23/2009 3:01 PM (GMT -6)   

I'm having one of those days too. I have bronchitis again, and stomach problems that you don't want to hear about. Not only am I sick of the disease, but I'm sick of having a suppressed immune system. As if lupus wasn't enough, I get everything that goes around. And I'm a freak about germs.

I understand how you feel!!!! This is tough. I'm glad you're having a better day today. The sun always comes out.


SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 6/23/2009 3:42 PM (GMT -6)   

Hi Litbitz, I'm glad you are feeling a little better today. at least your down to 4 more nights of work this week. I think we all can relate to how your feeling. It's tough when there is no one around to understand what you are going through. But you can always come here Someone always has a hug and a cup of hot tea for ya.



 scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Detrol LA,spironal,Lisinaprol,furosemide,azithromiazin,plaquanil,pottassium,Citrocal,vicodin,percocet,tons of inhalers.
Bear ye one another's burdens
Galatians 6:2 KJV


Angel MJ
Regular Member

Date Joined May 2009
Total Posts : 36
   Posted 6/23/2009 5:53 PM (GMT -6)   
great to read you are doing better - see breathing does help (even if it's just a little) LOL
one more night down!

Pat ***extra gentle hug**** for you as you get thru the bronchitis! i think i have something rampant in my head & chest ... even got a good ol' blister on my lip ... but i just can't seem to shake it off! been sicl forever (feels that way anyway)

Lilbitz ... i am also not on meds but not from allergies ... i have other allergies and can no longer eat chocolate ... hows that for sucky! did you know that even salami has dairy in it ... i was devastated! SALAMI ??? oh well
Back to the 'topic' ... i take OTC pain pills to get me thru and i know i am headed for the doc when i've eaten the bottle up or they stop working then time for Px (why do ppl abbreviate perscription as Rx?) ramble ramble (sorry)

carol do you do hot coffee? hehe
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