And now the dance begins....
I went to my rheumatologist for the second time after my labwork came back.
I really like her. She's very informative and takes into account the fact that I'm an RN so doesn't really sugarcoat anything which is nice.
I went into my history in my only other post on this site so I'll start from today rather than restate my history. She lowered my Prednisone dose since I was doing well with it to 7.5mg daily for a month and then 5mg daily for the next month after that. She said my last labwork was sufficient enough for her at the moment. She is also starting me on Plaquenil 400mg daily. She has named the beast Undifferentiated Connective Tissue Disease (UCTD). She says she knows it's a copout but that I still don't yet fit the 4 out of 11 criteria for Lupus. She wants to see me in two months and continue monitoring me. She feels that something will occur that will make a diagnosis sooner or later. All in all, I was fine with the appointment and diagnosis. I'm sure I'll get frustrated with it sooner or later but at the moment, I'm feeling good. Hopefully lowering my prednisone dose won't change that. I'm a little worried.
A couple of questions that hopefully someone will be able to answer for me:
1. Plaquenil- anything I should know about it from someone who has taken/is taking it? I've read the literature and looked it up in my nursing med book and all that...but I want an insider opinion. Did it work? Side effects that you've had? Etc etc? Anything you wanna tell me.
2. I was supposed to go back to my PCP for more testing for PCOS (polycystic ovarian syndrome) since they found cysts on my ovaries last year before all my labwork came about. I have been off of birth control pills for 2 months. I'm worried that when they do these tests that they're going to want to put me on birth control pills. Any thoughts on should I even worry about this other thing when I've got all this other diagnosis thing going on? Any thought on birth control pills and how it affects our health/ lupus symptoms?
I hope today is finding everyone well!!
Diagnoses- UCTD 2009, ovarian cysts 2008, asthma 2001