Hi Sunshine, well welcome to the exclusive group of my friends and family think I'm crazy and my doctor thinks I'm lying to get drugs.
I'm sorry you have to go through this but trust me I don't know how many times I have heard people here say that in the past 2 years. Also stop saying you "stupidly" I mean we do the best we can and frustrating ourself does not help. I'm sure you know an ANA is only one test and it by itself is not enough to make a dx. I'm been sick for years and just got DX'd. and I have been undx'd before too. I have come to the conclusion unles they do a skin biopsy or something that they go by their best guess.
I don't know what an average possitive ANA is but I have had rheumies tell me I was fine with an ANA of 1:2560. I was at the rheumy two weeks ago and I flat out asked him does a high possitive ana mean you have something or you don't have something? His educated answer was YES.???????? So they don't even know. I'm telling you that so that you don't get to stuck on the numbers. What you need is to consentrate on your symptoms and get the most help with quality of life management. You should not have to be in pain all the time. I'm no dr. but I don't think the stomach problems would cause a possitive ANA. But you should ask your rheumy's nurse to gt back to you or google it might show you something.
Ok bottom line just because your test came back neg. does not mean that nothing is wrong. It could mean it just isn't active right now. Then again it would be great to find out it is something else that is not such a life altering problem. I don't think he would have you come back in 8 weeks if he thought you were lying. That is actually quite quick. I usually see a rheumy twice a year unless something comes up.
Try to relax.. You know your body. Most dr. will treat your symptoms even without a dx. if your rheumy is not willling to do that you may want to consider a new rheumy. I have lost track of how many I have gone through. I remember the first time I went to one. I thought man this guy is a specialist. He's blowing me off. I feel like a real fool being here. I came here and talked to people about
what he said and they were all a huge support. Most of them are still here. (thank goodness) . They helped me and they will help you. You're not alone in this.
hang in there
systemic scleroderma. stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Detrol LA,spironal,Lisinaprol,furosemide,azithromiazin,plaquanil,pottassium,Citrocal,vicodin,percocet,tons of inhalers.
Bear ye one another's burdens
Galatians 6:2 KJV