Hi alli, I have read a lot that says that sometimes the symptoms precede the blood markers. How are your inflammation markers? If they were elevated, I would address that with the doc. If these are consistently elevated, then something isn't right and you need to push for care and treatment. No one should suffer. If they are willing to treat you, then a label is really not all that necessary. Make sure that you keep a paper with all of your symptoms also and keep it with you so you can write when something isn't right. One or two symptoms might not tell a whole story but when you have multiple symptoms, sometimes doctors can put the pieces together. It's good to write the time and date and if you are on any medication when these happen. I wish you luck alli!
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007, Localized Scleroderma 2009, Raynauds 2009
Meds: Plaquenil 400mg/day, Pred 2.5 mg/day (tapering), Methotrexate 10mg/week, Hydrocodone PRN, Flexeril PRN, Fiorinal PRN, Baby aspirin, Prenatal Multi, Vit E, B12, Fish Oil, Biotin, Calcium, Folic Acid