Am I going systemic!!!!!

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New Member

Date Joined Jul 2009
Total Posts : 1
   Posted 7/3/2009 5:29 PM (GMT -6)   
Hi everyone; I have never posted before so-----
I am a white male!  I was DX ~ 3 years ago, w/ Discoid Lupus.  I was on Plaquinal 200mg/day with bad side effects.  From Derm.  I was getting shots (in the face) every 2-3 weeks.  I would refer to it as 'shot night'.  
I am now seeing a Rheumy, and he put me on thalomide 50mg/day.  I am getting spots on my scalp!!!!!  Large flat lumps above my ears, giving me a tremendous headache that NOTHING helps! my hands are breaking out with a rash that Nothing helps!  I pointed out the spots on my scalp and my hands he said it could be Lupus..... I think that the increase in meds. is helping my hands. (and now feet)  
Could I be going systemic!!!????  With the increase in meds.  I realized how much ALL my joints feel slightly swollen and hurt!  When my meds. were lowered to 50mg every 3 days, my feet ankles and knees Hurt so much within 2-3 weeks I had to stretch before I could get out of bed!   
I have a new job.  My last boss cited lupus as one of the reasons he fired me.  Then he called unemployment and said I quit.   He canceled my health Ins. 3 weeks before he fired me!!!!    Is this legal????  

Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 7/3/2009 5:57 PM (GMT -6)   
Lupus isn't really considered a "progressive" disease. It just randomly chooses where it might "act out" next, so I wouldn't consider changes in symptoms to be systemic. Sounds like the rheumy is doing the right things for you, so if symptoms change I'd be calling him/her right up!

Don't know where you are, but if in US you should have a written letter of termination that includes the reason for leaving. He can't fire you for just randomly having an illness, and depending on the work laws in your state, he may or may not be able to fire you just because he wants to.

If you file unemployment, SS sends him a form to check off why you left....if he told you and SS different versions it definitely isn't right. But if you have another job already I don't see any good reason to spend the effort to "fix" it. SS just isn't that easy to move once they get something in mind.

I hope you feel better soon and that your new job has health insurance,
Lynnwood, Lupus & Sjogren's Moderator
Life is far too important to be taken seriously. - Oscar Wilde, 1882

Veteran Member

Date Joined Apr 2006
Total Posts : 1344
   Posted 7/4/2009 9:37 AM (GMT -6)   
Your employer would be in violation of the federal emplyment laws firing you because you have lupus.  You have a right to contest your employer in your state unemployment compensation.  Since you have a new job that is not necessary.   Did he write a letter or were there witnesses to the firing?  Cancelling health insurance is NOT legal unless he did it for all employees. 
Make sure you get everything in writing in your current job.
MCTD (lupus, scleroderma, polymyositis).  Diagnosed 2005.  Kidney, liver, GI tract, dysphagia, raynauds, Barretts esophagus, quadriplegic in 2005.  Recovered and now active in skiing, tai, chi, hiking, golf.  Meds: prednisone 2.5mg, imuran 50mg, amlodipine, benazapril, omeprazole, potassium, folic acid, vitamins, maxide and various supplements and vitamins.
Remain optimistic and you can overcome the odds.

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