The frustrating thing about lupus is that there is nothing "standard" about it. Some have it but test negative. Lupus is a difficult disease to diagnose and treat and some patients go years without having confirming lab tests even though there is no question they are sick and have lupus. Eventually, most patients will test positive and have the confirming lab tests. If you are being treated the meds can mask these tests in some cases.
MCTD (lupus, scleroderma, polymyositis). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, Barretts esophagus, quadriplegic in 2005. Recovered and now active in skiing, tai, chi, hiking, golf. Meds: prednisone 2.5mg, imuran 50mg, amlodipine, benazapril, omeprazole, potassium, folic acid, vitamins, maxide and various supplements and vitamins.
Remain optimistic and you can overcome the odds.