A veteran of Lupus and still have questions!!!

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New Member

Date Joined Jul 2009
Total Posts : 11
   Posted 7/11/2009 7:46 PM (GMT -6)   
Hi all.
Thank god for these sites. I'll make it short an painfull, LOL.
Now I know better than to live my life in the sun, but since I live on the water my stupidity always gets the best of me. Was out on the boat 4days in a row, lovin every second of it I might add. I think for the first time in years Im having a flare. Dont want to believe it cause I've been in so called remission for years. I look great nice an tan, but my joints an muscle are in over time.  I feel the swelling in my body an know something big is happening. Could it really be? Been so good for so long. Do I really need to run to Doc after 14 years an yell help? Please tell me it will pass on its own. Damm I know better then that. Anyone else do this to themselves an if so what was your outcome. Its ok I can take.

Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 7/11/2009 8:39 PM (GMT -6)   
That sun and being outdoors is sure a huge lure, isn't it? I'd be overdoing it all the time!

My suggestion is to go ahead to the dr and get the inflammation handled before it gets worse. Stopping or inhibiting active disease ASAP makes more sense to me than waiting it out & possibly letting it get a foothold and then taking over! Taking an extra med for a few weeks is better than getting back into a state of constant flares.

It's taken me almost 10 yrs to get into my hard noggin that planning and stopping BEFORE a flare is a better overall strategy, and I still mess up. I overdid it many many times & had 2-3 weeks of 'payback from lupus' before I started learning my lessons...cause & effect, cause & effect, .....doing the same thing over & over gets the same results over & over!

Take care of yourself,
Lynnwood, Lupus & Sjogren's Moderator
Life is far too important to be taken seriously. - Oscar Wilde, 1882

Veteran Member

Date Joined Jul 2007
Total Posts : 1048
   Posted 7/11/2009 8:55 PM (GMT -6)   
A Big Amen to Lynnwood's advice. Go quickly and get it under control. Don't beat yourself up to badly, that's a long time to be in remission. Honey, I can feel better for one day and convince myself i've been misdiagnosed!! LOL! Take care and let us know! Judy

Regular Member

Date Joined Jan 2006
Total Posts : 395
   Posted 7/12/2009 11:45 AM (GMT -6)   
I know, too. I go out on our lake every chance I get! I look ridiculous in my hoodie, long pants, towel wrapped feet and my hands tucked in my sleeves! And oh so glamorous behind big dark sunglasses. And still I get sicker. Frankly, though, living through snow off Lake Erie and being sick 11 months of the year, I figure it's worth it, cause it feels SOOOOOOO GOOOOOOOOOD to be warm in the sun..
But, yeah, you better go to the doc....and repeat after me.. the sun is not my friend, the sun is not my friend 100 times! yeah

God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, Piroxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily and Paxil, Ambien every night.

Veteran Member

Date Joined Jun 2008
Total Posts : 1470
   Posted 7/12/2009 11:50 AM (GMT -6)   
Hey there! Sorry about the trouble you are having. lynnwood, judy, and sue said it! Call your doc now before it gets out of hand!!!! Hopefully you will get some relief!



21 years old...Systemic Lupus , lupus nephritis , raynoids , Carpal Tunnel

Ultram, Prednisone, Cell-Cept, Lisinopril,  Ambien, Flexeril, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Aspirin 81 mg, Vitamin C

The Old Normal is no more so I and we have to find a New Normal...


Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 7/12/2009 11:57 AM (GMT -6)   
Hi CharE and welcome to the forum.

I'm so sorry you are having a flare after so many years in remission. 13 years ago, when we went to the beach for our honeymoon, I threw caution to the wind and spend the week getting a gorgeous tan. Plus I drank too much, ate too much, and slept not enough, and a week later went into a bad flare. It was a hard learned lesson that I won't repeat.

I believe the others are right: march yourself right in to your rheumy. You want to stop this in the tracks, and the sooner the better.

I'm glad you found this forum and hope you'll stick around.

SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex

New Member

Date Joined Jul 2009
Total Posts : 11
   Posted 7/12/2009 7:16 PM (GMT -6)   
Thank you all for your kidness.

New Member

Date Joined Jul 2009
Total Posts : 11
   Posted 7/12/2009 7:19 PM (GMT -6)   
Thank you all for your words of advice and kidness.....
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